Archive | August, 2014

Electricity

16 Aug

I caught this to share with you…

I watched the night sky crack over and over again.

The pulses of light were like memories returned.

A few moments (a long, thirteen second exposure) calcified, concentrated on my screen (once the vocal billows rumbled past and I could plug in again),  and the fine, reaching, dendritic threads appeared and yes, this is precisely how it feels to have lost moments returned after a decade or more.

One small sparkle reaches and branches into more crackles into cracks like a heavy foot on the lake, not yet settled fully into winter.

People can tell me a memory, but it just doesn’t feel true, organic, like the deep in me every cell, electrifying every nerve of a firsthand memory, and these second hand memories just can’t capture the intricacies of how my senses & mind focus and capture each morsel, waft, tactile, auditory, proprioceptive vision in an overloaded, carnival ride.

Each large crack, each branch, each baby eyelash and hair-thin thread a sensory memory, each grouping creating a breathing, visual, auditory, wildly flavorful, supersaturated, olfactory snapshot in time, in my strange and wonderful curious, thirsty, synesthetic, autistic, insomniac, famished brain.

It is electrifying.

It moves my limbs ever forward, seeking the tiniest splinter to restore conduction, to send out the dendritic heat and light so the bits and bobs form, what is for me,  a complete memory, to fill the gaps where darkest shadow conceals unknown depths and a dragon or two

Exposed by the flash, the beasties and dragons pass control back to me and I can safely reach out, touching scales and jagged rock. Once I can feel the textures, and smell the sweaty mineral condensate and feel the radiant ginger spiced hotness of breath, and a slice of greyed sunlight falls on faces again, then I can set my pack down and explore before the calm and the darkest, soundless, healing, most welcome sleep embraces me.

-b.

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You might be an autism parent if….

6 Aug

You might be an autism parent if...

You put chocolate hazelnut butter in the nutribullet to smooth out some of the natural graininess to make it more palatable for your texture-sensitive kid.

(Note:  this experiment would have worked a bit better with a larger amount of this tasty stuff.  Unfortunately, I didn’t even think of getting him to try it again until I had polished off almost the whole jar. It’s not like I went weeks without that occurring to me.  A jar of Justin’s Chocolate Hazelnut blend only lasts a couple of days, at most, around here. It’s irresistible. Really. Our supermarket and Target both carry it, and the Maple Almond (so good on cinnamon toasts). You can also find it on Amazon: Justin’s)

He did ok with the Chocolate-Hazelnut, on warm toasted baguette, but not that enthusiastic.  He did eat three pieces of toast (small pieces) slathered with it, though, and that’s freaking amazing.   I also got him to eat three (individual raviolis) Amy’s frozen Ravioli even though they clearly had some degree of tomato sauce on them (I scraped off as much as I could. How am I the only person in our family who has zero Italian roots and I’m the only one who will touch a tomato, or sauce?!).  YES!

I’m still finding protein and fresh veggies to be a challenge for him, as he won’t eat nuts (Barney Butter thankfully is smooth enough, and available at Publix and Target(woohoo!) that he accepts it as a peanut butter substitute, as PB is off our menu due to G6PD Deficiency), can’t eat legumes (again, G6PD Deficiency is a factor) and he is mostly vegetarian (we are not, but he just can’t deal with the tearing and chewing of ANY meats), so he consumes quite a bit of milk and I make him a super-smoothie every couple of days with bananas, berries, hemp seed, almond butter, chia seed, yogurt, etc..to try to get at least some variety, as far as nutrients go, into him. He also really likes Life cereal and Cheerios, so at least those are fortified. He is growing and healthy, and the kid has a brain on him, so this seems to be working. Of course, I’ll never stop introducing new foods to him and now that he is older, he doesn’t protest but instead tries everything (serious progress!), so it is easier.

You can share your “You might be an autism parent if…” moments on two fantastic facebook pages:  You might be an autism parent if. and one of my favorite special needs parenting resources/communities:  Shut Up About Your Perfect Kid (seriously, if you don’t have the book, you NEED their book AND their Facebook community/page.  This was the first thing I read when I realized that this journey was veering way off path (and at the time, through what looked like an impassable thicket, plenty of prickers, nests of dangerous beasties, etc)…  Here’s a link to the book on Amazon: Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children.

I also got him to eat fresh cherries (not fresh picked, fresh from the supermarket… we have been mostly housebound this summer… long story for another time) WITH the stem and stone intact!  So I’m not rocking the Lady Macbeth manicure from pitting the damn cherries this go around.  Here he is, after I carefully demonstrated and gave him instructions on how not to break his teeth but still enjoy a good, sweet, juicy cherry.

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A frozen cherry did not fare as well:

Found it.

Peace,

Bek

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