Tag Archives: food

You might be an autism parent if….

6 Aug

You might be an autism parent if...

You put chocolate hazelnut butter in the nutribullet to smooth out some of the natural graininess to make it more palatable for your texture-sensitive kid.

(Note:  this experiment would have worked a bit better with a larger amount of this tasty stuff.  Unfortunately, I didn’t even think of getting him to try it again until I had polished off almost the whole jar. It’s not like I went weeks without that occurring to me.  A jar of Justin’s Chocolate Hazelnut blend only lasts a couple of days, at most, around here. It’s irresistible. Really. Our supermarket and Target both carry it, and the Maple Almond (so good on cinnamon toasts). You can also find it on Amazon: Justin’s)

He did ok with the Chocolate-Hazelnut, on warm toasted baguette, but not that enthusiastic.  He did eat three pieces of toast (small pieces) slathered with it, though, and that’s freaking amazing.   I also got him to eat three (individual raviolis) Amy’s frozen Ravioli even though they clearly had some degree of tomato sauce on them (I scraped off as much as I could. How am I the only person in our family who has zero Italian roots and I’m the only one who will touch a tomato, or sauce?!).  YES!

I’m still finding protein and fresh veggies to be a challenge for him, as he won’t eat nuts (Barney Butter thankfully is smooth enough, and available at Publix and Target(woohoo!) that he accepts it as a peanut butter substitute, as PB is off our menu due to G6PD Deficiency), can’t eat legumes (again, G6PD Deficiency is a factor) and he is mostly vegetarian (we are not, but he just can’t deal with the tearing and chewing of ANY meats), so he consumes quite a bit of milk and I make him a super-smoothie every couple of days with bananas, berries, hemp seed, almond butter, chia seed, yogurt, etc..to try to get at least some variety, as far as nutrients go, into him. He also really likes Life cereal and Cheerios, so at least those are fortified. He is growing and healthy, and the kid has a brain on him, so this seems to be working. Of course, I’ll never stop introducing new foods to him and now that he is older, he doesn’t protest but instead tries everything (serious progress!), so it is easier.

You can share your “You might be an autism parent if…” moments on two fantastic facebook pages:  You might be an autism parent if. and one of my favorite special needs parenting resources/communities:  Shut Up About Your Perfect Kid (seriously, if you don’t have the book, you NEED their book AND their Facebook community/page.  This was the first thing I read when I realized that this journey was veering way off path (and at the time, through what looked like an impassable thicket, plenty of prickers, nests of dangerous beasties, etc)…  Here’s a link to the book on Amazon: Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children.

I also got him to eat fresh cherries (not fresh picked, fresh from the supermarket… we have been mostly housebound this summer… long story for another time) WITH the stem and stone intact!  So I’m not rocking the Lady Macbeth manicure from pitting the damn cherries this go around.  Here he is, after I carefully demonstrated and gave him instructions on how not to break his teeth but still enjoy a good, sweet, juicy cherry.

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A frozen cherry did not fare as well:

Found it.

Peace,

Bek

Lemon tastes self.

15 May

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Pfankuchen? NO! FUNkuchen!

2 May

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Image

Choco Chex!

19 Nov

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Ok they don’t look all glam and pretty, but at least we can eat them! Rice Chex tossed in melted Enjoy Life chocolate chips (soy free!)… So crunchy and tasty.

Nothing is….

6 Nov

black and white.  Except:  Old photographs, some films, and these quintessentially New York cookies.

We lost a dear friend last month.  I made these for the celebration of his life that his wife threw.  I closed my eyes and tried to image what foods remind me most of NY (where they are from and where I am from) and Black + White cookies at the diner are what came to mind.

All of these friends of his came together, old friends met new friends, and new friendships were formed.  His son (and sworn protector of my son) and Alex horsed around most of the day while the grownups shared tales over beer and comfort food. The kids made us laugh.  It didn’t feel odd or inappropriate.  It was indeed a celebration of his life.

There is sadness, as he died too soon.  There was so much laughter because everyone had a story to share.

I keep looking at the photo I took of the river, and I decided to rename it.  I am calling it Broke-down Palace, in honor of our friend.  He was a huge Grateful Dead fan.  The lyrics of Broke-down Palace always seemed gentle and lovely to me, but they never up and sat right in  the middle of my chest like a curling stone, until a few days before John left this life.   I listened and was paralyzed and I listened again.  I had another copy of my image, “Brokedown Palace”, on a stretched canvas, that I planned to bring to Hospice House, to share with him and his friends and family.  I never made it there in time.  I still have it here, and I think I will send it along to Hospice House as a donation, because it is such a serene image.

(the image links to imagekind, where prints of this particular image are for sale)

The song just works so well with this…(click here for a neat page on the lyrics)

“River gonna take me
Sing me sweet and sleepy
Sing me sweet and sleepy
all the way back back home
It’s a far gone lullaby
sung many years ago
Mama, Mama, many worlds I’ve come
since I first left home

Goin home, goin home
by the waterside I will rest my bones
Listen to the river sing sweet songs
to rock my soul

Goin to plant a weeping willow
On the banks green edge it will grow grow grow
Sing a lullaby beside the water
Lovers come and go – the river roll roll roll

Fare you well, fare you well
I love you more than words can tell
Listen to the river sing sweet songs
to rock my soul”

We have this on a huge canvas in our kitchen.  Makes me feel at peace with the universe. This is the happy place I imagine when I meditate to fall back asleep or when the pressure is too much.  Oddly, I picture this place in black and white, just as presented here.  Color seems distracting to me, and particularly with this shot, it had a feeling of concealing the emotions.

Anyway, I meant to blog about my birthday but apparently I needed to share this instead.

Kiddo was feeling cold and goosebumpy and wanted to snuggle, so he’s curled up next to me, while I sit and type, with one arm getting achier from the weight of kiddo’s spectacular noggin.

xo,

B

 

 

 

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