Archive | March, 2012

For Friends/Family of Special Needs Parents:

16 Mar

I think this applies pretty well to other special needs and not just autism.

In my virtual travels, I have noticed a major theme and source of extra stress for parents of kids with special/different needs and that is that family and friends that were a part of their life before the special needs came into play (before the child/children were born, before the parents became concerned and started seeking answers…  Anytime, really…) are either no longer present or seemingly unwilling (or actually unwilling) to accept their friend’s often complex responsibilities and family challenges and maybe their friend’s increased need for someone to listen, a friend who won’t judge them, just kindness … A FRIEND.  They could really use a friend. If you still want to be a friend (and this goes for family- immediate and extended pretty equally) but just don’t know what to do, here’s a great place to start:

(I do have other links like this…I’ll update and post them when I can…)

Your Child Has Autism, and I Don’t Know What to Say: Seven Ways to Go the Extra Mile to Keep Your Friendship Thriving

via Your Child Has Autism, and I Don’t Know What to Say: Seven Ways to Go the Extra Mile to Keep Your Friendship Thriving | Delightfully Different Life.

 

Please share this resource!  Us exhausted parents of special needs kids thank you!

xo

B

Ryan Gossling + Special Needs + Adventures In Extreme Parenthood = Awesome

16 Mar

Sunday, the brains and funny bone behind ExtremeParenthood.com, has struck comedy gold with her take on the whole Ryan Gosling Hey Girl meme thing….

Just clickety click and you’ll see what I mean.
Not a special needs parent? Click anyways. It’s good stuff, and we could always use another regular-needs parent aware that we go through so much with our kids and their special needs…So much so that we have to learn what equates to a new language, new culture, new pretty much everything and for some it’s a crash course, for others it’s more of a gradual immersing in the wild ocean waves and foam and errant riptides that can be parenting, but is more frequent in special needs parenting.

And I think you’ll laugh. Even if you don’t know what an IEP is or PECS are. And especially if you do….

Here’s the linkeydoo again…

xo
B

p.s. There are a pile of Ryan Gosling Memes and Ryan Gosling Meme-spired Offspring out there…

Two more favorites:

Hey Girl, It’s Rachel Maddow

Handmade Ryan Gosling

Matcha Matcha Ma’am…

7 Mar

Yes.  I’m still here.

Yes.  Those are green brains!

My get up and go got up and went long ago.  I think it used mapquest for directions to wherever it was heading, and well, hasn’t been seen since.  I’m 99.9% sure it had my last marble in it’s pocket.

More soon.  Really.

Another couple of tests last month, so this month I have to get those bills corrected and argue with the insurance company because apparently they’ll pay for CT scan if you have swollen lymph nodes AND pain.  But if it’s something painless (and we all know that typically it’s the painless stuff that’s more worrisome) then they want to pretend it doesn’t exist.  I swear I know entirely too many people who are like the insurance company in that way…..

I have been drinking Matcha (with Splenda… Don’t bother correcting my usage of splenda in the comments.  People who do that make me bananas.  Not all of us tolerate stevia or sugar alcohols or honey or unbleached/brown sugar.  Thanks for your input, but if I’m going to have one freaking vice it will be mine to choose and I choose the splenda because everything else has been off limits for awhile.  Peace.)…. I think I am addicted to Matcha.

Occasionally, I whip (with a handy little bamboo whisk with a chunky handle that’s almost easy to grip with my RA-stiff hands) up a little too much.  I can’t waste it.  Good matcha tends to be a little pricey (I can rationalize that for you if you want me too) but it is, in my experience, more of a basal rate of caffeine, whereas coffee is an instant and short lived bolus…  So I take the extra matcha, sweeten it (with SPLENDA…. LAAAAA! Actually with EZ Sweetz, a liquid version so I don’t have to attempt opening packets and dumping them in without spilling everywhere and making my kitchen and myself look like Bronson Pinchot in True Romance), and pour it in a silicone ice tray.  This week I only had the brains ready to go.  So I have these fantastically large matcha brain-cubes for my widemouth water bottle… As they melt they release gentle Matcha flavoring into the water and they buoy my energy just a wee bit.

I also make kid a simple frappe with milk, probiotic fruit/veggie powder, matcha, and a wee bit of honey or fairly local (in state) demarara…. (and again, want to protest my use of milk as it does something mean to the whateverkins in the green tea?  I’m just happy I found another way to get protein, carbs, fiber, fat, and probiotics into my kid. Beggars can’t be choosers…. It’s dairy or bust around here thanks to enzyme deficiency and food additives.)

I killed my laptop while trying to be a good, organized do-bee, so that picture will have to wait.

More soon.  Really. *cheers*

B

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