Tag Archives: type 1 diabetes

This is it….Now I have Huey Lewis & The News in my head.

14 Oct

for today.  Too crummy feeling to write anything meaningful… Though Grey’s did set me off on a rant this evening. I mean really, who wouldn’t want a decommissioned firehouse reno with a fire pole to call their own!??!?!?  And letting nature take it’s course as far as getting pregnant with a reproductive issue and a genetic issue possibly on the table (I think the truth is always the best thing) for Meredith and Derrick… It made me a wee bit bitter.

A good percentage of us don’t get that avoiding science and medicine thing at all in our lives, and especially when it comes to having kids. And for many of us it’s not by choice that we have to have all sorts of interventions, and it’s not our fault (though people sending me links on how I can cure what can’t be cured is getting old.  Also getting old: people sending me thick photocopies of information on curing a disease I don’t have.  I have Type 1 diabetes even though I’m 34 and well padded- an unwelcome reaction to the various treatments I have had over the years and tight control and loss of mobility due to other crap. Jiminy freaking crickets.  I get that people want to help, but here’s some advice to friends and relatives and strangers:  if you find out a loved one is sick or has a chronic condition- before you send them all kinds of stuff (particularly “cure” crap and assorted “the medicine you are on is evil” crap (because it may be the only medicine they can take for what they have) stop and check your ego and ask “what can I do?” or “is there anything I should know or read?” or “can you recommend a link/site where I can learn more?”.  That would be huge for everyone.  Instead, those of us living with various illnesses that we did not ask for or give to ourselves would stop feeling isolated and instead feel supported and yay!   That would be heartwarming and take a whole pile of anger out of the universe- or I guess because it cannot be created or destroyed, it would shift into warm, cozy, happy. Again:  YAY!

Darnit. I lost my train of thought and my eyes are all achy and swimmy.  I can’t keep track of my parentheses.  My apologies.

I’d like to think I wouldn’t be this cranky if I could take cold medicine or nyquil, but I can’t take that shtuff, so it’s saline and Coldcare (boiron. Works well, but man could I use a nyquil-style sleep right about now).


I think I’m going back to my Little House on the Prairie and BONES diet.  At least until I’m feeling better. But today was the LHOP where Pa has to put Bunny (Laura’s horse) down and her Grandpa said he wouldn’t let him do it, but he had no choice in the matter because it would have been cruel not to put Bunny down because back then they didn’t have hospitals like Angell in Boston and specialists who… Anyway.  That and the Nellie pretending to be paralyzed episode from yesterday (I have discovered the Hallmark channel) have put me in a mood (and because I’m sick, and I’ve got a bear of another thing to deal with that I’ll talk about soon. Promise.)

Ok. This is really it for today.

Oh! Got my Cimzia starter kits, but can’t start until my fever is gone (my “I’m sick and hurty in a viral-flu-ish kind of a way” fever and not my usual “my immune system is going gangbusters on everything today” fever.  I swear, sometimes I think my immune system is like a cat chasing a speck of dust it think it saw in a shaft of sunlight.)

Goodnight.  Hope everyone is feeling fantastic, washing hands frequently (as flu season barrels down on us), and if you are feeling crappy I hope you are feeling better soon and don’t forget to cover your cough and sneeze with the inside of your elbow.

No really. This is it.  I’m 3/4 asleep and keep leaning on one key (I have been known to type-and fairly accurately- in my sleep, but today is not that day).



P.S. Had a weird dream this afternoon that I was shopping with the fearless leader of this NaBloWriMo thingy and the brilliant mind behind “I’m Not Hannah”.  We were at this mega-shopping center thing.  It was like an open air Mall of America kind of thing and we were supposed to buy birthday presents for the kids and then do our own errands and meet up to drive back home.  It was a peculiar dream as I don’t think either of us are “mall people” (haven’t been to a mall in over 4 years.  I’m kind of weirdly proud of that fact.)

Getting healthy & tasty goodness….

1 Jul

Berries and Ricotta.

Originally uploaded by CleverGirlBek

OK. I finally took the plunge. I am doing a “formal” diet…
Working hard to get my sugars under better control and hopefully lose a few pounds..
The goal isn’t to look better, it is to be better- healthier and have more energy…Prevent some complications…
If I lose a few pounds then hallelujah… Actually, when my sugar is brought under better control I typically gain a ton of weight – not that I haven’t been gaining anyway -things kind of went haywire with my metabolism between the tumor being removed and my meds, it’s just that tighter control usually means I swell up like a blowfish the first few weeks and then once the swelling goes down I “deflate” and am left with a few extra solid pounds.

So…. What am I doing? I’m doing ediets… I’m doing the Glycemic Impact program… So far so good… The first week on it my sugars totally normalized and I was actually able to lower my basal insulin rates (I’m on a pump) a smidgen. While I will never be able to eliminate insulin, as I have type 1 or juvenile diabetes, this makes me happy as it shows that there is palpable, quantitative changes afoot….
For a “juvie” and for my weight I am on a relatively small daily dose of insulin (it’s around 60% of what I should be on for my weight and activity level) but still, changing numbers make me happy…

I wanted something cool and sweet and tasty but I didn’t want to blow the diet and screw up my pretty numbers…

Ricotta and berries!
It’s low fat (preferably non-fat, but I found the one container of non-fat in the county and haven’t found another since! Hopefully other dieters live in more health conscious locales…) Ricotta
Frozen berries (this mix is European field berries I believe…they did have a supermarket brand version but this one comes in a ziploc bag that stands up in the fridge and when comparing amounts I think I paid $0.10 more for this one…I had to rationalize this to hubby as he’s the kind of trying to save a penny and buying stuff that we don’t enjoy and won’t use…)

you put the ricotta in a bowl, add some berries, add a packet or two of splenda (I’m guessing you could try stevia or another sweetener…I am partial to Splenda)…

Take a fork and start smashing away…Actually you might wait a minute or two for the berries to just start to defrost… Then I just jab my fork in there until all of the berries are broken up…It is important to put the ricotta in the bowl with the berries when you do this otherwise the tasty but very staining berries like to slide and jump overboard onto whatever light colored fabric you have within a 2000 square foot vicinity. It’s true. Then fold and mix and eat while it is still cold and a wee bit frozen… Oh the Ricotta should just be fridge temp when you start…


I’m back from outerspace…

20 Jun

Ok. So not *actually* outerspace, more like innerspace (and no, Dennis Quaid was not there and I was not stuck in the 80’s :-)

June 14th, Flag Day here in the US, is always a “holiday” in our home. It is the anniversary of my diagnosis with Type 1 (“juvenile”) diabetes and each year we celebrate (Jeff takes the day off and there is usually cake or chocolate involved- kind of a way to safely give the big D the ol’ stinkeye….) . Some folks just don’t understand and think it’s sick that we’d celebrate another year of such a shitty, all consuming disease. We call it D-Day in our home and we definitely celebrate- we aren’t trying to make light of such a serious disease (although I do make plenty of corny diabetes jokes) -we are actually celebrating another year of my hard work to keep this disease from maiming or killing me. It’s a big Hip-hip-horray! for another year without complications.

This year was different.

Despite a lot of hard work after 14 years of ups and downs and strange happenings this was the first D-Day where I couldn’t celebrate another year being complication-free. In the past couple of weeks my docs have all agreed that it seems that I have autonomic neuropathy. Basically it means that the nerves that regulate my heart rate, breathing, digestion, balance, etc are crapping out. Actually, it’s not just my autonomic nervous system either. My hands shake and detailed work is a challenge- a challenge I happily take on but yeah, there are tears and a lot of frustration. I’m glad this didn’t happen when I was younger. I’m more levelheaded now. I’m also more bullheaded- but it’s a focused bullheadedness. I don’t just lower my head and strike whatever is in front of me, these days I aim and focus all that energy at appropriate (most of the time) targets.

With creating/crafting/metalwork/jewelrymaking this means that I’m modifying tools and techniques where I can. I’m using a pistol grip rotary tool instead of a traditional flex shaft. I’m learning to push myself less physically – I can no longer work until the muscles in my hands and wrists go numb or cramp up because that means I can’t even pick up a pencil for at least a week. So I’m pushing myself more creatively. I’m reading a lot more. I’m languidly playing with materials and discovering as many of their possibilities as possible – sometimes without the intention of actually making anything with a largish scrap of silver- sometimes I just hammer and play. Melt and play. It’s meditative. It keeps me out of trouble. And I’m writing down everything and instead of spending hours figuring out a new piece I’m actually keeping a sketchbook fairly regularly. That way I’m being smarter with the little time I have to fabricate. I’m learning to take baby steps again and once the initial frustration passes (and the little patches of residual frustration!) I’m finding it to be calming and centering. It’s like I’m letting go of the material (the finished product to introduce to the public…keeping up with listing new stuff on venues such as Etsy) and just enjoying the process, the experience…. The interesting thing is that by reaching this meditative point of creating I’ve also found myself to be more productive than before I got my big news… I’m also finding the materials to be more malleable and creating with metal is less a recollection of what I’ve learned in the past (I’m self-taught and learn by doing and experimentation, if I don’t do it that way everything escapes me) and more of a natural motion- as natural as breathing in and out. As natural as the rhythmic pumping of a heart. As natural as standing up without blacking out. I’m focusing on my creations to work through this but also as a reminded of what I do still have control over.

Ok now a little poll/survey question thingy:

If you have arthritis/carpal tunnel/hand tremors/structural issues- what mods have you made to your crafting tools/equipment or are there any tools and/or accessories you have found particularly helpful?  Thanks in advance!

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