Tag Archives: sugar

Hello Friend.

26 Dec

Hello.

Originally uploaded by CleverGirlBek

Boy’s big wish from Santa this year was for an “xo laptop”…

We decided to tighten our belts more, suck in our guts, and instead of a mountain of less expensive goods that get lost in the shuffle, get him one through the “Give One Get One” Program.

The benefits are many.
1. We bought one, the one that we gave will go to another child somewhere else in the world as an educational tool…

I love this idea, but our home economy doesn’t really allow for this degree of charity… After all, almost all of our money, goes to directly support individuals with type 1/juvenile diabetes, arthritis, autism/asperger’s, and depression and a slew of other issues.  When looking at the cost, the “2-fer” part makes it look positively cheap… When looking at the reality that we just get one for $xxx it is still a wise investment as it will help boy with skills in all areas. Sure we could do that on our regular computer, but that would wind up in lost time and money (on hold with customer service, having computer serviced, possible emergency intervention by Geek Squad) and the cost quickly (trust me on this one) takes care of itself…

2. Our mac may now be safe from the mad clicker/deleter…. He has no interest in our boring mac’s.  He has a swanky, rugged looking, very useful machine that we are not yet regulating…(the xo will have to go on the same “time bank” as other activities, but we are giving him another day to explore…)

3. This is an adventure for all of us- we are mac and ex-windows XP people…So we have quite a bit to learn…The “xo” let boy jump right in and explore… So far he has drawn pictures, made digital music, written some bits for a story he is working on, played “secretary” with me (he dictates, I type…), and made the speech emulator say “Who farted?” followed by a laugh that he had to spell out…He also took a bunch of photos of himself. The amazing thing is that we didn’t show him any of it. We showed him how to open the case and shut the system down, but that is it. He is learning this new-to-us OS the way I learned mac… Marie Montessori is smiling down on us…

4. I tried to explain the “give one, get one” thing to him and the intentions of OLPC, and his interpretation seems to be that there is a kid, elsewhere in the world, that he is connected to because they have, in a way, twin computers. I think his perspective is somewhat like my own at his age- do you remember those “for the less of a price of a cup of coffee” from back in the days when a cup of coffee was less than $0.40 commercials? Well, I wanted siblings when I was a kid and I was adopted. In my brain this equated to being able to buy a sibling for $0.40/day. I remember rolling coins for my mom on occasion and thinking, “Wow. This is like a month of a sibling.”…I digress…

Speaking of the concept of “other” and a world without boundaries, I know it’s probably not possible (or way far outside of my noggin to even think about without sweeping some other important stuff off the table) but it would be amazing with the give one get one if participants on either end could opt into a penpal sort of a program (via the xo, of course)…

Anyway, here is boy waving and saying “hello” to whatever friend may be out there….

(and check out that sweet swiveling screen! I have already been informed “Your Macbook screen just sits there”… :-)

Anyway, there is more to chat about regarding our Christmas morning, gifts, mayhem, etc…But I am going on day 2 of being in bed (boy is sitting on my bed in the photo…he grabbed his laptop and sat right next to me with our CushTops/lapdesk-y things and we went to “work”….

Wondertwinpowersactivate!

11 Sep

Wondertwinpowersactivate!

Originally uploaded by CleverGirlBek

Ok. So I’m finally starting to catch up on this end….

I finally received my Dexcom Seven STS (Fedex in Fort Myers was holding it hostage and didn’t bother to notify anyone…Seems the shipper forgot to put our unit #) which, and this is the short version, tests my glucose and gives a result every 5 minutes….

The sensor that samples the interstitial fluid is really tiny, although the applicator scared the crap out of me… I’m not big on the “insertion” devices when it comes to my pump infusion sets (sub-q catheters) as I’m a bit of a control freak- I don’t like my subcutaneous needles to go fast- I can’t handle the anticipation and the build up- I like to put them in slow and mellow…. It hurts less that way, at least for me…

Anyway, I have been wearing this thing for 2 weeks and I’m so surprised that each sensor did stay on (with strategic adhesive reinforcements and glad press and seal during showers to protect the adhesive) for the two sessions and they were not uncomfortable (occasionally the one in my belly felt like it was giving me an electrical zap…annoying, but very intermittent….

I am realizing that there is a huge learning curve for these things… As there was with my pump, which I am relearning right now as well to help get in better control…

The transmitter is manageable – fairly small- like a small disposable lighter. This week I have been wearing it in my arm (way less painful than insulin injection or pump infusion set insertion in the arm…pleasantly surprised…) as having it in my belly last week showed a whole bunch of “noise”…More likely than not the noise was from my purpley lightning bolts of fury (stretch marks from my giant preggo belly when I was carrying the big guy)…So this week I tried the arm…

The receiver is another story- not crazy about it. It’s freaking huge. I rigged a hook to it to hang it from my waistband as it came close to taking a dive a few times, and it is not waterproof. I did order a great little pouch from diabetesmall.com but I’m kind of digging being able to check the screen without opening the velcro flap…Still undecided….
This week the receiver keeps losing contact with the sensor and transmitter and it is making me nuts- a simple thing like having the transmitter in contact with my mattress or the receiver near my laptop seems to disrupt it.… So far I know not to rely on any of the numbers but the dexcom is helpful for following trends and hopefully adjusting my insulin dosages/basal rates, but I’m still testing with finger sticks like a maniac (around 10 times a day lately) and noticing some fairly wide differences in numbers…

The one thing I am really disappointed about, that I may return this and try for the Navigator, is that this doesn’t alert you to potentially dangerous trends (potential lows and highs) but it does alert you when you go above or below a certain point. I knew this going in, but I don’t think I realized how important that feature is in my world… As my hypoglycemia unawareness is pretty lousy and a low leaves me out of commission for up to 24 hours these days, and interstitial fluid readings are around 15-20 minutes behind finger sticks, I would like, at the very least, a higher “low” threshold… The other day I was registering as low at 90 but my fingerstick was 45. For me, that is too late and a little scary (especially in the middle of the night) and made me wonder if one of my reasons (I had a few) for wanting this bulky technology in my life is now invalid…

I mean, trends are going to save my life, but the way I look at it- the warning of lows, in advance, could save my kid’s life and my life and will give me back more time that I am losing from recovering from the highs and lows….

More on my Dexcom Seven experience over the next few weeks…. Still trying to figure it out and make a decision…

Ping-tastic!

8 Jul

Just wound up on the Animas Corp website to see if I could order my pump supplies using their webstore when I found a lovely little press release about the new One Touch Ping Glucose Management System.

At first glance the Ping looks like the old one touch ultra smart meters… On further reading, it seems to be a combination of insulin pump remote and data management system, when combined with the new EZ Manager MAX software.

I spoke to a rep in the supply ordering dept at Animas this morning and found out that when it is released in Mid-August 2008 it will not be an add on to my existing pump, a 2020 (which was brand new in January 2008)… The One Touch Ping is a complete package and not just a shmancy number crunching meter as I thought or a meter and remote- it is an entire pumping package.

While I would love a continuous glucose dealio with all of my heart and soul, but cannot afford one at this time, I am ecstatic that Animas & OneTouch (same parent corp- Johnson & Johnson) are making data management easier.

I really don’t care about the remote feature.  I do not need remote access to my pump. I am not a concealer, I wear it with pride clipped to my pants.  Some folks have asked if it’s a new model cell phone…Someone asked if it is a satellite phone (it’s a little more chunky and rugged looking than most current cell models)… When I need to use it I unclip it, do what I need to do, and clip it back on…It does help that it has a clip that is attached directly to the back of the pump…Back in my Cozmo and even in my Disetronic H-Tron days I found the various pouches to be helpful but not perfect… And only late in my Cozmo usage did I discover Unique Accessories’ solution which worked beautifully and for me… Also, I’m not quite clear on what sort of screen the PING meter/remote (can we call it a glu-mote?) will have but one of the reasons I chose the Animas 2020 this time around was the clarity of the screen (in color and super bright…it’s like having a little lcd TV on me at all times…OK, without anything that entertaining.)it’s really nice not having to hunt up reading glasses or put my health at risk by doing a squint and guess…

As I have had my 2020 for less than a year the cost of exchanging it (they have a tiered program) is $399. Not a ton of money and for me totally worth it as recording usable data has always been a weak area for me in my diabetes care.   But it’s still $399 so I will wait and see what happens with bald guy’s job and kiddo’s school stuff.

The other cool part of this announcement is that there will also be new EZ Manager MAX software and it will be MAC and PC compatible!  Woohoo!  I do use a Mac but I also have Windows installed just for my diabetes management software. It will be so nice to not have to use Boot Camp anymore…

Anyway, good news all around…

You can read the press release here.

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