Tag Archives: spine

Old pictures and updates…

10 Mar

Found this today.. This is Alex and me. Just before his 1st birthday, he was admitted to Children’s Hospital in Boston for every neurological test except the one the doctor wanted him admitted for (an MRI).  The cribs are solid steel and built like tanks. The nurse told me I could climb in if I wanted to…So I did.

Bek & Lexo the Great (2004)

Bek & Lexo the Great (2004) *click for all blog entries about Alex...*

Anyway, I love this picture and so does Alex and I just felt like sharing on this sleepy Tuesday night. (Can you believe how big he has gotten? Can you believe that his head is now only a couple of centimeters smaller than mine? And mine is in the >98% to begin with!)

For those of you that are curious, we still don’t have results on my MRI from last Monday (yes, it has been almost 9 days. We were supposed to have the report within 24-48 hours.  The neurologist’s office finds this odd as well but hopefully the radiology peeps are just reading and rereading it and writing a thorough report).  I am still having the jello legs/weakness thing and the arm thing. I’ll post when we have more info.  Needless to say I am steering clear of power tools for the time being, but never fear! I have quite a few pieces in my arsenal that you have not seen yet! So I will be posting those and also planning for a “Move us the heck out of Florida to anywhere with an increased likelihood of Jeff finding a job and more options to help Alex rock even more Fund” grab-bag/mystery sachet/container o’surprises thingeroo fundraiser in the near future… So keep those eyeballs on this space and keep your fingers crossed that we get some sort of an answer soon so we can get back to whatever it is we do here.

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Hugs all around,

xo

Bek

Checking reflexes…

22 Feb

Today I was talking to Jeff about some spine info I found on the internet.  I haven’t been googling about my shoulder, and my arm being numb and shaky. I was going to do that after the MRI and it has gotten somewhat intermittant rather than constant and constantly worsening… But it’s still there…

And my legs are weak.

So I know something is going on.  So I googled.  I read aloud to Jeff.

And Alex heard me.

He comes in to the bedroom, smiles and me and

“BAM!”

Slams my left knee cap with his solid hardwood toy tool bench hammer.

Shocked the daylights out of me.

He told me “like at the doctors”

I replied “they use a rubber hammer!”

Jeff came to see what the fuss was about and I lost it.  I just cried and cried and cried, while I really wanted to laugh but the tears just kept coming.  It was funny, by itself it’s funny…..But my body does not agree…  My back hurts, it feels like a stack of cement blocks grinding against each other, whittling themselves down to nothing.  It’s not just pain, it’s that nails on chalkboard, things not moving right feeling that won’t quit.  My right arm isn’t working right, it’s numb or all pins and needles and the intention tremor is worse. And now my legs feel like I just ran a marathon and went on a bar crawl- sore and rubbery, wobbly.

Blech.

Kiddo feels so bad about the hammer thing.  He was trying to help. He is always trying to help me feel better.  And that makes me feel so terrible.  I want him to focus on being a kid, I want to be able to enjoy his childhood and his life and I really want to participate.

I hope this is just some temporary swelling thing and nothing that requires anything else to drag the last of my energy and my strength away from me.

Will update soon…

xo

b

The Truth Freaking Hurts.

24 Sep

For the past few weeks I’ve been having mega-low energy.  Lower than usual.

Because I haven’t been the most physically active Mama over the past few weeks (or rather less physically active than usual because my energy is low and my muscles aren’t obeying lately) I have been trying to make time for kiddo combined with a little rest…We are trying a more structured afternoon here, so having this sort of Mama and kiddo time of any sort seems to be just what kiddo and I needed…

This week so far I am feeling a little better and actually getting around the house a little easier and even took some new photographs, reorganized some work trays, and plotted some other things I need to do on my calendar…  So, I took a little quiet work with me so I could get something done while I was mildly alert and while boyo was eating his snack, while we both watched a movie…

Half way through the movie, kiddo started rearranging my work tray, as my work wasn’t making a pattern and he needs patterns…. I asked him to please stop and he said he wanted to help me with my work so I wouldn’t have to work so much.

I felt like such an arse.  I haven’t been working that much but I do most of my work when he is getting home from school as the morning is a bizarre game of fatigue just running me down.  I wake up. I get out of bed. I go to the kitchen to make tea.  Before it is ready I have to go sit down on the bed but I barely get there because my limbs are too worn to propel me.  This goes on for a couple of hours. Once the 2 cups of tea and the diet dr. pepper kick in along with my ADD meds, I usually have around 2 hours to do whatever I have to do.  This is going to make me lose my last marble.  I went through similar fatigue in January and I stopped taking on new custom work.   I hope this fades faster as I really do miss being at least mildly productive and I miss the interaction, the dance, that is the custom process….

Anyway, I was talking to kiddo and I asked him if he likes spending movie time with me in the afternoon (his dad is doing the active and more focused work with him) and he said he did.   As it turns out he wants to spend more time with me and doesn’t feel like I have spent time with him.  I get this, I do. I understand it.  The balance is elusive for moms who are healthy.

I asked him if he remembers spending time together when he was a very little guy and he said he did. I asked if we had fun and he told me that we went to the doctor’s office.  He is right, we were in doctor’s offices for his stuff and my stuff, at least twice a week for his first few years.  But that broke my heart.  His most vivid memories of me from his earlier years were in doctor’s offices, and going to sleep at the hospital and waking up with the booboo on my neck.   These things make him very sad. He told me he is worried.  “About what?” I asked. “About you” he replied.  I replied, “that’s funny, I was worrying about you!”…And then I broke down.

I guess somewhere, deep down, I was hoping that maybe he wouldn’t remember.  Or that those things were our normal wouldn’t bother him so much.  But they do.  And they bother me too.

Wood You?

17 Jul

Logs Logs Logs

Originally uploaded by CleverGirlBek

Like to see my new vintage glass with the reflect-o-matic sterling silver treatment…Glows….

Trying to upload photos and descriptions for a few new pieces….

Anyway, I may be blogging more in the next few days… I have been stuck in bed for the most part all week. While it sucks that baldguy lost his job and our unemployment rate here is pretty miserable, it was good timing as he is keeping after boyo and fetching me provisions.

Something is very wrong in my back and I am trying to figure it out…
I had a big bad emergency spine surgery 12 years ago and the pain is near there…. I fear another infection or that perhaps the vertebrae are finally squashing some nerve… Anyway. It really freaking hurts.

But, I can stand still and type and I feel ok, for the most part….And I’m not a wuss. I have had pain every day for 12 years. But dull, achy pain is one thing, feeling like someone is chiseling into your spine and ribs (on just one side, thankfully) is another.

So here I am…

Had an hour and 15 minute long MRI this morning but won’t know anything until they decide to call me. Medicine is so lax down here it’s ridiculous, so I’m not holding my breath for an answer. When I had the parathyroid tumor two years ago the docs suggested we use a “wait and see” approach. I wound up doing a boat load of research and demanded the scan to see what was going on and then I found my own surgeon to schedule the surgery(Dr. Norman’s Parathyroid Clinic in Tampa- amazing surgeon…). Wait and see. Those things don’t just disappear- they are there and they cause problems until they are removed or you die from the freaking side effects (heart issues, digestive issues, liver issues…yikes!)… So I’m none too confident about my medical care here…If whatever this weird back thing is needs anything more invasive than an alcohol swab I’m heading north for a spell.  If this is another bone infection, I’m worried.  Last time they didn’t find it until I was in ICU, on all sorts of apparatus, in a coma.  No more comas for me, thank you very much.  One was more than enough! I have to be here for my little guy.

Anyway. Here I am….Trying to stay as still as possible while my brain wants to run around doing a happy dance because the new issue of BUST magazine is coming out next week and woohoo! one of my pieces is in the Etsy co-op ad. Yay! So buy a copy and check out all of the shops.

Ok. Going to grab some tea and go be as still as a rock in front of the TV.

Sorry for the kvetching. I’m in a good mood really I am!

Hugs, albeit very gently frame-y ones, all around…
xo
b

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