Tag Archives: soy

No Beans About It.

20 Jul

Fantastic article on G6PD Deficient patient diet suggestions.

I am a person with G6PD Deficiency (and female so I got my mutations from both genetic parents, which is a little more rare as far as probability goes, but not as rare as once believed.) I am raising a son with G6PD Deficiency and doing my best to not have him endure the oxidizing damage due to contraindicated substances that I have endured in my lifetime. I am hoping that by spreading the word and correct information regarding G6PD Deficiency that awareness will smother ignorance and stupidity that seem to come into play all too often.

Historically, it has been considered a disorder mostly of everyone but white females (and men, but men have been more widely studied and they only need one affected X to be fully deficient…) Women, need mutations on both x’s (one from each parent) to be considered deficient so we are less likely to be fully deficient, and more likely to be partially deficient, meaning we have one x with the affected gene instead of on both x’s. Once upon a time, the term carrier was used but the term partially deficient is coming into vogue as for many women, due to the particular variant or due to lyonization, it is a more accurate description. Of course, as is the case with many disorders that are believed to either include or exclude a particular gender, race, or geography, it is revealed that the excluded race or gender was never really studied, due to many circumstances, but it really is starting to look like an unfortunate tradition that has killed and injured so many people just because they didn’t fill the prejudicial mold and were believed to be categorically exempt or that it was an incredible rarity.

As it turns out G6PD is not as rare as once believed, particularly in females. G6PD Deficiency is one of the top 5 genetic disorders of pre-natal origin causing 26% of global common birth defects.

It is real and it goes beyond avoiding fava beans. The website G6PDDeficiency.org is a phenomenal resource on many aspects of G6PD Deficiency, including handy lists of contraindicated medications (don’t assume your doctor knows what is safe. Check and double check. I have found that a good pharmacist is worth their weight and seem to have a better knowledge of contraindications, but still I would check and double check and check again for good measure.

The article/page I have linked to, below, offers an excellent rundown of how we do need to be vigilant about what we put in our bodies, as there are different degrees of deficiency just like there are over 400 identified variants of this particular enzymopathy.

Why G6PD Deficient Patients Should Avoid Legumes.

I’ll post more about our experiences living with G6PD Deficiency as I get around to it. Awareness does seem to be growing in the USA. I was thrilled to see that the writers of the USA Network’s “Royal Pains” included a female patient they eventually diagnosed with Favism/G6PD Deficiency. I was even more excited when they suggested testing her young daughter due to the hereditary nature of the disorder. It was really fantastic to see awareness of this disorder and that it can impact females, as well, raised in entertaining “Royal Pains” fashion. Pretty great.

PLEASE PLEASE PLEASE consider signing the petition over at G6PDDeficiency.org.  Dale Baker, the force behind the site and a lifesaver, is collecting signatures to present to hospitals and physicians to super-emphasize what all of us know, that routine newborn screening will save lives.  It will take you just a minute, but it can save lives and make all of our communities healthier.  After you sign, or even if you don’t sign, please consider tweeting a link to the petition or this blog post.  Awareness is powerful.   Thank you. 

G6PD Deficiency Newborn Screening Petition

Baking 2: Electric Boogaloo

10 Oct

The danger is not lest the soul should doubt whether there is any bread, but lest, by a lie, it should persuade itself that it is not hungry. -Simone Weil

The hunger for love is much more difficult to remove than the hunger for bread.
Mother Teresa

Bread for myself is a material question. Bread for my neighbor is a spiritual one.
Nikolai Berdyaev

The wretch who digs the mine for bread, or ploughs, that others may be fed, feels less fatigued than that decreed to him who cannot think or read.
Hannah More

To be sensual, I think, is to respect and rejoice in the force of life, of life itself, and to be present in all that one does, from the effort of loving to the making of bread.
James A. Baldwin

(love love love BrainyQuote.com)

Bagels/ Laugen (pretzel)Bagels (by me!) The grey/weird speckles are Celtic grey sea salt. Yum!

We found out rather quickly, that all commercially available breads at our local supermarket (Publix) contains either soy, a soy derivative, or ascorbic acid.  All of these ingredients are on our list of forbidden foods as Alex and I try to build our health and learn to live (and hopefully live well!) with G6PD deficiency.  The only bread we have found is pita bread, and while we enjoy it sometime, we both had been craving some fluffy, more leavened bread.

First off, I ordered an inexpensive Sunbeam bread machine from Amazon.com.  That solves the daily bread issue- I can make a 1.5lb express loaf in an hour, without any kneading or oven heating to make my arms and hands hurt more (from the kneading and the hand-wringing when I get another sky-high electrical bill…thankfully the cooler season is almost here, so I will be able to shut off the air conditioner. Woohoo!).   This is a pretty good solution, and allows me to make a loaf every day.  We usually have fresh bread at dinner (the express loaf, while still warm, tastes just like Carabba’s bread according to Alex) and the rest of the loaf is used to make Alex’s school lunch for the following day (now that Smucker’s Uncrustables are off our menu. They were a staple during my pregnancy with him and have been a staple for him since starting school.)   However, I noticed a neato looking book on bread on Amazon.com and coincidentally, my friend Marissa mentioned it the next day.   So I considered that a sign and bought it.

It is called “Artisan Bread in Five Minutes a Day”  and it is fantastic.  All of the breads are for the most part, “no knead”.  Basically you mix up a base dough in a large batch, using a mixer with a dough hook or just a large spoon or your hands.  You mix just enough to combine the ingredients, but not enough to actively knead it to develop the dough.  Most of the doughs can be kept in the fridge for up to 14 days, and the book features many recipes and suggestions for using those doughs. All of the doughs can be used to take multiple types of breads, so it’s not like a person who actively bakes using this book will get bored over the 2 week period, from eating the same loaf constantly.

However, being creatures of habit, we have found that the Olive Oil Bread is our favorite and it is perfect for pizza, focaccia, calzones, even a simple rustic round.  I do find that one batch of the Olive Oil bread dough only lasts us a couple of days as I’m definitely not on my feet yet, so when I am I like to get as much done as possible.  It’s hard for me to cook anything, but if I make pizza for Alex on one day, I’ll set up a few mini-pies so he will have lunch for school and a snack the next day, and Jeff will have leftovers.

Anyway, just wanted to share this awesome cookbook with all of you…. It has definitely put artisan bread within the grasp of this arthritic old gal, and in the mouth of my little one with all of our “contraindicated” foods.

Oh and the best part?  You should see how much Alex is eating now and how happy he is!   It’s an incredible change and it just makes my heart smile to see how strong he is getting.  It’s making-me-all-teary-wonderful!

xo

Bek

P.S. Thanks to my friend Marissa, for suggesting this book!  Please check out her amazing art & visit her Etsy shop!

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P.P.S. Does anyone have an easy to use ice cream maker they really like? (I’m thinking an electrical one, to preserve my energy)

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