Tag Archives: management

No Returns Without Receipt.

14 Apr

I promise things will be more upbeat and accidental thong-esque shortly.
Really.
Promise.

Here’s some good news: baldguy started training for his census job yesterday! The first work he has had in 20 months! So proud of him! I became an Auntie this week when my baby brother and his wonderful wife welcomed their gorgeous baby girl! I hope to get out to OH later this year (pending me being patched up) to meet everyone in person!

Ok, now back to the serious-ish stuff.

So here are my questions for you today.
1. Have you ever had a headache so intense that you lost the ability to comprehend language? I swear I almost said “NARM!” (Six Feet Under) today because I couldn’t find words or understand them. Alex was sweet and hung out with me on my bed until I regained the gift of gab. He really is a wonder, a gift, a miracle. Best kid ever.

2. (and this one is from our local news station) Should adoptive parents be able to return their adopted children? Vote below!

(sorry. this picture was just too perfect.)

No Returns Without Receipt

I’m a little scared to ask my adoptive parents how they would vote. Mostly because my head is just a ball of intense pain and standing in line at Adoptions R’US while the clerk tries to find the 34 year old receipt in the system and my mom makes my dad handle the return while she browses for a sportier model just sounds like torture.

I kid. Well, there’s always a wee bit o’ truth and honey in there for you.

I’m planning a longer bit on adoption, as it has been coming up so frequently lately- news, blogs, twitter, etc… I just kind of want to put my perspective (as an adult adoptee with multiple disabilities) on these issues… But for now…What are your thoughts?

Is returning an adopted child screaming of equality? The next thing you know, natural born are going to be demanding to be returned as well. And frankly, there are some rather sizeable physical limitations to that scenario.

Anyway,
I will call the doc in the morning. I just can’t get comfortable. I am reading quite a bit though, as the Kindle is light enough that I can lock up my elby-bones and read while resting flat. As of this evening though even pancaking myself on the bed isn’t easing the pain. So I’m up. For now. Until meds kick in. They don’t even take a nip out of the pain, but they make me sleepy and take the edge off the raw pain*-adrenaline cocktail that is ruling my life lately.

xo
B

*and really I’m not a big baby. I have been through some crazy shidoobi in my day, especially with medical stuff. I have a hugely high pain tolerance and between that and my Asperger’s I think I’m not really making how bad the pain really is clear enough to the docs. I’m kind of a goofy girl, but I get really quiet and mellow and calm with pain. I think I calculate everything more precisely, so as to not trigger more pain or damage.

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Ping-tastic!

8 Jul

Just wound up on the Animas Corp website to see if I could order my pump supplies using their webstore when I found a lovely little press release about the new One Touch Ping Glucose Management System.

At first glance the Ping looks like the old one touch ultra smart meters… On further reading, it seems to be a combination of insulin pump remote and data management system, when combined with the new EZ Manager MAX software.

I spoke to a rep in the supply ordering dept at Animas this morning and found out that when it is released in Mid-August 2008 it will not be an add on to my existing pump, a 2020 (which was brand new in January 2008)… The One Touch Ping is a complete package and not just a shmancy number crunching meter as I thought or a meter and remote- it is an entire pumping package.

While I would love a continuous glucose dealio with all of my heart and soul, but cannot afford one at this time, I am ecstatic that Animas & OneTouch (same parent corp- Johnson & Johnson) are making data management easier.

I really don’t care about the remote feature.  I do not need remote access to my pump. I am not a concealer, I wear it with pride clipped to my pants.  Some folks have asked if it’s a new model cell phone…Someone asked if it is a satellite phone (it’s a little more chunky and rugged looking than most current cell models)… When I need to use it I unclip it, do what I need to do, and clip it back on…It does help that it has a clip that is attached directly to the back of the pump…Back in my Cozmo and even in my Disetronic H-Tron days I found the various pouches to be helpful but not perfect… And only late in my Cozmo usage did I discover Unique Accessories’ solution which worked beautifully and for me… Also, I’m not quite clear on what sort of screen the PING meter/remote (can we call it a glu-mote?) will have but one of the reasons I chose the Animas 2020 this time around was the clarity of the screen (in color and super bright…it’s like having a little lcd TV on me at all times…OK, without anything that entertaining.)it’s really nice not having to hunt up reading glasses or put my health at risk by doing a squint and guess…

As I have had my 2020 for less than a year the cost of exchanging it (they have a tiered program) is $399. Not a ton of money and for me totally worth it as recording usable data has always been a weak area for me in my diabetes care.   But it’s still $399 so I will wait and see what happens with bald guy’s job and kiddo’s school stuff.

The other cool part of this announcement is that there will also be new EZ Manager MAX software and it will be MAC and PC compatible!  Woohoo!  I do use a Mac but I also have Windows installed just for my diabetes management software. It will be so nice to not have to use Boot Camp anymore…

Anyway, good news all around…

You can read the press release here.

Not really type-A at all….But I have to be… For the boy….

2 May

Magnet Board…

Originally uploaded by CleverGirlBek

This is our magnet board. I am not a neat freak. I’m nowhere near organized.  I am struggling with this, but it is helping…. *phew*
The magnets were made by me using the Make-a-Schedule software from Do2Learn.com ….
We use the magnet board to lay out boyo’s every task for the day… As he does the various things he gets to put the magnet in a little container (like a piggy bank)… At the end of the day we count them up and they count as points to be used for things on the “menu” of treats…

Right now it is broken down in a fairly detailed fashion but as he masters certain tasks that contain multiple steps they will be truncated to focus on other areas…

The Prize Menu comes from conversations with kiddo, so they really mean something to him…
He loves going to the big car wash (actually, it’s the same size as the other car washes, but that’s what he calls it…) so for 200 points he gets to go to the carwash with us… Or for 200 points we can go out for ice cream on the weekend… 200 points can also be watching a DVD movie with baldguy and me…

The magnet board/scheduling like this is not easy. Right now it and helping boy with the tasks on it are all consuming. I’m exhausted and burnt out but boyo is doing great. This is helping in a huge way with transitions- it’s like he can fight with us and totally lose his marbles, but the pictograms are irrefutable….

We are still working out the kinks… And eventually will have a more variable point system, but starting with the basics works best for us… So here we are…

Oh and the do2learn.com software is wonderful- the desktop version requires a bunch of downloads to get all of the images onto your computer (so you can use the software without a live internet connection- I do most scheduling during boyo’s therapy and they do not have wifi in that building so using it off-line is important to me… If you do order the desktop version make sure you scroll down on the get images menu- there is a “get all” option at the end- you don’t have to be a dolt like me and click them all and wait one by one… Ugh. need more sleep…)

Maybe I should put my sleep on the schedule…. :-)

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