Tag Archives: job

Old pictures and updates…

10 Mar

Found this today.. This is Alex and me. Just before his 1st birthday, he was admitted to Children’s Hospital in Boston for every neurological test except the one the doctor wanted him admitted for (an MRI).  The cribs are solid steel and built like tanks. The nurse told me I could climb in if I wanted to…So I did.

Bek & Lexo the Great (2004)

Bek & Lexo the Great (2004) *click for all blog entries about Alex...*

Anyway, I love this picture and so does Alex and I just felt like sharing on this sleepy Tuesday night. (Can you believe how big he has gotten? Can you believe that his head is now only a couple of centimeters smaller than mine? And mine is in the >98% to begin with!)

For those of you that are curious, we still don’t have results on my MRI from last Monday (yes, it has been almost 9 days. We were supposed to have the report within 24-48 hours.  The neurologist’s office finds this odd as well but hopefully the radiology peeps are just reading and rereading it and writing a thorough report).  I am still having the jello legs/weakness thing and the arm thing. I’ll post when we have more info.  Needless to say I am steering clear of power tools for the time being, but never fear! I have quite a few pieces in my arsenal that you have not seen yet! So I will be posting those and also planning for a “Move us the heck out of Florida to anywhere with an increased likelihood of Jeff finding a job and more options to help Alex rock even more Fund” grab-bag/mystery sachet/container o’surprises thingeroo fundraiser in the near future… So keep those eyeballs on this space and keep your fingers crossed that we get some sort of an answer soon so we can get back to whatever it is we do here.

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Hugs all around,

xo

Bek

Ch-ch-ch-changes…

26 Jun

Lots of changes happening in our little world right now…

thankfully baldguy has been asked to stay at his job for a couple more weeks to help transition one of the clients so that worry can get pushed away for more immediate concerns and changes…

Boy just does not transition well…The kid needs consistency…Yesterday I found out his teacher had been let go.  The two aides/teachers who work in his classroom are wonderful, but they are very different.  Over the past year I have been able to tell when his head teacher was out for the day by his behavior and attitude at home afterwards.  Transitions like this set him back so far.  We try to prepare and help him, but in this case he was told his beloved teacher was out on vacation last week… and Boy is home sick so far this week so I don’t even know if they have left a note in our box.   So there was no warning…No ability to help him transition by saying “see you later”… This could set him back months.  Gahhhhhhhh!

and he’s sick.  Kid on cough syrup (and they did not have any dye free cough syrup at walgreens yesterday) with a hefty dose of red dye #40.  No wonder my hair is falling out in handfulls this week.  He is crazed.  He is the kind of crazed that you see on Cops and zombie movies- hyper and lashing out, mumbling incoherently, shouting nonsense, utterly pantsless.   We see his ADHD most of the time and we have adjusted and it is only some of the time that he doesn’t self-sooth these days, but this week has been like living with an angry, illogical, drug addled strung out little man.  He is usually our family safety officer.  He will often request backup if I am plugging something in (because you always need to have a grown up buddy when doing things like that) and has frequently declared that plugging anything in must wait until daddy gets home… Yesterday, in his whirlwind he plugged the radio in by himself (during a huge thunderstorm)…This morning he found the one roll of film in our home and unwound it completely…I may completely lose my last marble in the coming weeks…

Anyway. Just home with boy trying to keep him out of trouble.  His ADHD in this sick and cough syrup addled state and my ADD (completely and utterly without the H) are extremely incompatible and frustration runs deep in both of us.

Ok. Enough of my babble. He is “watching” a CD on my TV.  He likes to watch the numbers count down.

I need to check my to do list and make sure I’m knocking things out….

In the next week or so I will be blogging about some new tools we are and will be implementing into our home to help with our rampant attention deficit issue (all three of us have it…) …

Speaking of which…Boy just hollered at me that we need to dance.

Ok. I’ll be back.

Hugs.

b

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