Tag Archives: insurance

A is for….

22 Mar

Awesome Friend

Laaaaaaa!

Echoes

X-Blocker!

Artistic

Nutty

Drains

Electricity

Reading

(They had to make a “poem” using the letters of their names… That’s just his first name(above)…. His last name list included “Aspie Power!”, “Unique”, and “Superstar!”…The Laaaaa! in his first name is additional proof (like I needed any!) that the apple does not fall far from this Mama apple tree…I have been known to bust into showtune or operatic moments… Lots of “Laaaaaaa!” for no apparent reason, and just for fun…X-blocker is his superhero name.  He can throw his arms and legs up and out like an X and bam! you just can’t get by him-especially in the kitchen or if you are carrying something bulky.)

Anyway, he’s having a hard time.  His teacher, from what I am getting at this end, is having a hard time understanding that Alex’s misunderstanding directions is not willful.  He spends hours on homework with his Daddio every afternoon- so much so that he has no time for play during the week.  It is a struggle.  I think a regular, non-Aspie, non-LD kid would take awhile on the homework, especially as a first grader, but for Alex it’s near impossible.

And the kicker?  They sent home a homework folder with instructions on when homework is due, grading (if one bit is not done he gets a 0 for homework for the whole week), and what needs to be done (ie 5 spelling activities, x number of pages of reading, x number of pages of handwriting, x number of pages of math homework, etc…All supposedly per/week…)

So what do we find out?  The instructions in the homework folder are completely inaccurate from what the teacher wants.  So who gets penalized?  You’ve got it.   It wasn’t x number of pages of math/week- that was a typo- it was that many pages PER DAY.  For the love of Pete! And nobody told us until we were more than half way through the quarter!  They gave out a project assignment, with a due date, which Alex and the bald guy stayed up late working on (and even took a field trip to add authenticity to the “magazine” they were creating)… Alex goes to hand it in and guess what?  It is due the next week and now it is double the pages and there are more parameters to follow.

So, WTF?

To top it off, Alex has come home a few times seeming pretty glum.  I have asked him what happened and I used to assume it was a kid/social issue, and it is sometimes, but more often than not his teacher (who I have met and she seemed like exactly what Alex needed…We did provide the school with information that explains Asperger’s on a basic level and I even gave them some books on the topic and offered both myself and the bald guy as available to address any concerns, questions,etc) is making comments to him that are really pissing him off.  Ok, that’s my word.  But as he has recently taken to not lashing out when someone says something that doesn’t make sense and instead is bottling it up to bring home to me, the words are eroding his self-esteem.

Today he came home and told me that his teacher said that he only does his homework when he feels like it.

?!?$?#@%$@$

WTF?

4 hours nightly and no time for play… Any other time is used talking about social stuff and reading together.

And she thinks he’s only doing homework when he FEELS like it.

Yeah. I know!

The baldman is going to have to go in to talk to her and the principal.  I can’t do it. The same questions and gaps in communication keep coming up and baldman and I are forever walking around with Peanuts squiggles over our heads about the things Alex brings home- homework, things that other people said…. Baldman is going to have to take this by the horns.  I’m too sick (this is the first time I have my laptop open for more than 5 minutes today.) and tomorrow I am pleading with the ER to admit me for tests. Something very screwed up is going on with my spine, nerves, brain.  I’m in pain, I’m exhausted, and I am not alert at any normal human functioning time to communicate with school. And I can’t drive. I can barely leave my bed. And the whole getting my point across without following a tangent and never getting to the point- you know, my Aspieness, my ADD-ness- also lead to Baldman handling this one as an answer.  But it’s really hard being the one that understands Alex. The only one that really understands Alex because we share a neurological disorder, and because of that disorder and my other health crap I can’t advocate for him.  I can’t be as active as he needs me to be and I swear to *insert deity/higher power/universe at large here* that I would rather be a head in a bubbly giant pyrex beaker thing than this broken pile of pain and vertigo and numbness and hypersensitive senses, because as long as there was a way for me to communicate effectively I would do so.  I would advocate for my kid, loud and clear. And people would give me the benefit of the doubt and come to be with questions or for clarification, rather than just ignoring me or judging me.

This is so frustrating.

Anyway. I’m off to the ER tomorrow. It’s the only way I can get the tests I need to see if the damage in my spinal column has finally impinged on the cord, and maybe figure out what the heck the mass on the back of my leg and on my left abdomen are all about.

Sorry for the bitch-fest. Had to get it out.

No where was I… Oh….So…. Parents of awesome Aspies and kids with communication/learning disorders etc..(similar or otherwise)… Any suggestions on communication between home and school? I was thinking of doing the daily report card thing…Has anyone had any luck with that sort of thing? Any suggestions for a kid who doesn’t have an IEP (he goes to private school)?

If I wasn’t this sick, I’d homeschool him in an instant.

And no the baldman can’t do the homeschool thing because (drumroll please) he starts work in 3 weeks! Yes! That is the good news you have waded through this post for since you read the word “LAAAA!” up top!  Baldman got a job with the census!  He starts training in 3 weeks. Which means that even though most of the mechanics of this old broken body are not working or are not feeling right while they are working, we are in a time crunch….

Anyway….suggestions? resources?

hugs all around.

xo

B

P.S.  Once I am back on my feet- or at least sitting upright a little more comfortably, I will be running some sort of a fun and exclusive fund raiser to pay for the impending hospital, docs, and lab bills.  I have a bunch of stuff I never listed and I’m thinking of doing another grab bag extravaganza.  Whatever it is, it will be pretty sweet, ok?  If you have other ideas let me know!

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Stay of Execution

21 Mar

This feels like a stay of execution.

This busted body is fading fast, but now maybe it can get the care it needs to stick around a little while more and advocate for my kid and his special needs.

Grateful.

xo

Bek

McCain’s Choice of Writing Implement.

15 Oct

“I should use a pencil. No, doesn’t feel right. Pencils can be erased. I voted against pencils in 2003. When Senator Obama was a third grader he used a pencil….
I should use a pen. Yes. Joe Plumber uses a pen to write his estimates and handwritten receipts when he is fixing soccer….um… SoccerGrandma’s pipes. There is nothing more permanent then a pen. Soccer. What would a groundbreaking individual write with. David Beckham writes with a sharpie. I have seen the commercials on the seat back TV during my many flights to many foreign places. Obama has never been to any foreign place. Where was I? Beckham. Sharpie. I’ll write with a sharpie. I’ll hold it so the name is visible to Joe Plumber at home. It says non-toxic. It’s a health product. All American’s are healthy. Sharpie. That’s it. It’s permanent. It’s bold. It’s the maver….best darn tootin’ pen Mrs. Sally Beauty Supply would want.”

(ok. my monologues tend to be lengthy…but maybe I’m just bitter because my health insurance  does cost $17,400/year (for a family of 3) because of my pre-existing, non-preventable condition….)

**Please note that none of this was really said (to my knowledge) by anyone, except me.  Of course there is the monkeys and typewriters in a room theory, but they tend to have less scattered thoughts than I do.  This is opinion, it is mine.**

Good morning!

11 Jun

The sun is shining and it didn’t cool down here at all overnight…. I was never a fan of “canned air” via perpetual air conditioning but down here I need it! (random trivia: I did not sweat normally  until I was 19.  Seriously. I just would get beet red and very occasionally my skin would get mildly damp…My first big sweat was apartment hunting in Boston when I was 19.  I thought I was dying for a few moments there.  No I’m not crazy! (at least not as far as this particular situation goes) Imagine you had never “swat” (past tense of sweat, right? :-p)  and then all of a sudden you did. Weirdness….

Anyways.  The A/C is pumping and I’m getting ready for my test tonight by making an epic phone call to my insurance company….Eek. If time really is money then by my calculations I wouldn’t be saving any money by having health insurance- and I have some expensive conditions!  Caring for my diabetes would cost (out of pocket) around $2500/month (without doctors appointments!) as I’m on a pump.   I think our insurance company should have a dedicated customer service person just for me.  With the 10 hours a week I spend on the phone they could easily even split Beth (that’s my imaginary customer service associate) between me and 3 other sickos to comprise her 40 hours per week so she would be eligible for bennies by working full time.  But how much of her work day would be spent trying to call her insurance company to have medically necessary things covered?  I’m guessing our insurance company doesn’t offer their own health insurance to their people.

Anyways.  I have to go make breakfast for boy blunder, call the insurance company, and take a shower.

It’s going to be a “get crap in order” kind of a day…Then more doc appointments tomorrow.

Wednesday I’m planning on cooking up some fun stuff- some new metal pieces to focus on  and with all of my 8 zillion materials organized I may have to take some step by step instruction photos to post here and on flickr…  That way when my organized regime comes crashing to the ground (with many-a-bead pinging as it bounces along the floor! Ugh. Beading should only be done on carpet! but for metal work I much prefer tile as it’s fireproof…..Now all of you know why I’m a migrating crafter!) we can all look back and “remember when” and sigh…

Have a great day!

Hugs,

Bek

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