Tag Archives: ESE

Guess who is the Student of The Week?

9 Dec

C’mon!  Guess!  What?!?!?  You need a clue?  Ok… Just this one:

Yep.  That’s my kid!  YEAH!

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If only everyone could see…

7 Nov

the amount of progress and growth this one image shares….

My kid has his hand in a pumpkin.  He is helping with scooping out the pumpkin guts and seeds.

I rubbed my eyes and pinched myself when I saw this little bit of fantastic in his folder.

This is a kid who doesn’t like getting his hands dirty or grubby.  He has huge issues of tactile defensiveness.

This one picture captures 5 years of hard work and progress.  Alex has worked so hard, on his own and with the help of occupational therapists and with tactile challenges introduced here at home (I try to include him in every smooshy part of cooking and baking).

My amazing, sweet, kind, funny, smart kid.

He kept his hand in long enough for them to take the picture.  He confessed to me that it made him hiccup (made him very nearly vomit) and it was horrible.  I confessed that I was amazed he even put his hand within a foot of pumpkin guts.  I also told him that ladies put pumpkin guts on their faces to help them look pretty.  He thought that was (like most girly things) hilarious and weird.

So proud of him.  He is of the mindset though that he did this once and will never ever do it again (he passed up helping with pumpkin carving at home).   That’s fine by me.  I’m so proud of him for not hurling all over the place when he did it this once.  I’m so proud of him for not melting down over the idea of touching pumpkin guts.

Fantastically gigantic heaps of slimy progress!  YEAH!   (and there are more snapshots and tales of the amazing work he is doing.  I can’t wait to share them with all of you! I’m proud of him on any old day.  I’m bursting at the seams with all of the things he is mastering/conquering.)

 

xo

B

Midnight, moonbeams, and polka dots

28 Oct

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Midnight chocolate cupcake dipped in moonbeam icing. A dozen of these and some tasty chocolate dotted brown sugar blondies (all of it soy-free/g6pd-d friendly) are going to be used as prizes to raise money so Alex’s ESE class can go on a field trip this year. Sweet!

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Quiet….

18 Oct

It’s quiet… The stress of this week, the fight or flight response of Tuesday’s meeting with the school district, has mellowed a bit…

We are not pulling kiddo from his school until we have a better plan in place.  I feel like we were blindsided and given no time to gather people and information as the test results came in and BAM! same meeting we were writing the IEP- with really no idea of what we could include…

So we are on a little mental vacation from planning and researching a change.  Instead I have been strategizing on how to reach kiddo and the three of us have been working together to plan how to help him in the immediate future.  It’s frustrating.  He is overwhelmed, but also relieved…  He told me he was worried about school.

He said, “I fit in.”

I think he fits in right now the way that someone in camo fits in with the forest…I think he blends enough that some of the kids accept him.  If he feels that he fits in then I am so happy about that.  I never had that feeling of fitting in as a kid- not even with my family, immediate or extended, and I struggle with it as an adult, but for the most part I have my tribe. I am loved and I love. And I love that Alex feels loved by the kids at school, even with the constant struggles and the huge differences.  I love that they take him by the hand and sit him down and even though he is often looking off into space (or at the fire sprinklers or ceiling fan), they treat him as an active participant…  When I pick him up from school the kids tell him that I am there and on occasion this one girl who Alex adores will help him clean up his space and remind him to bring his lunchbag to me, at the door to the classroom… She will hold his hand and lead him to me.  Sometimes I get progress reports.  It’s amazing the differences between the two, and he is 5 and she will be 4 soon and there are similarities, but it’s the differences that are so beautiful and startling and it is this difference between Alex and the other kids that keeps him safe in many ways, at least for now.  At least until they start noticing differences as a negative thing.  It happens. It is life. We have so much work to do and what a rollercoaster we are on…

But I wouldn’t trade this experience for the world…

Difficult Day…

14 Oct

Love Oma…

Originally uploaded by CleverGirlBek

Had the eval review with the county education folks…

Kiddo has significant impairment and they feel he needs to be in a classroom dedicated to special needs and social communication and fast.

They are suggesting a school that is at least 30 minutes away….That’s 2 hours of driving. 5 days a week. Full days.

They said he can start tomorrow if we can get the public school enrollment stuff together by then.

Finally the psychologist said “or we can work on a gradual transition”….

Lots of leg work to do…

Lots of information to understand…

Lots of lack of funds to keep him in his current school and beef up his therapies and total lack of support from the school district unless he is in the intensive setting.

Frick.

Called my dad to talk about something else and just kind of let it all out.

I mentioned something else about my mom and he mentioned that she has other things going on, since her mom died.

Yes. My Oma died, apparently, on Monday. No, it wasn’t unexpected. She has a major stroke a month ago and has been in a coma and receiving hospice care. She lived in Germany. When I was a kid we visited her and Opa every summer in their tiny little storybook town.
When Alex was born, my mother wouldn’t let me send pictures to Oma in the home, because Oma didn’t want pictures of the baby taking up space. Ouch. Have I mentioned the narcissistic control of information in our family?

Anyway. I’m sad. I’m overwhelmed. I’m having a really hard time functioning right now. Part of me wants to pour my wee bit of energy into my raw materials. But the rest of me just can’t move. It’s like when you overfill your cereal bowl as a kid and then put the spoon in to get a bite and…well, you get the picture. My head is at maximum capacity. I’m fixed on one spot. Eyes wide. Tears arriving at regular intervals.

I’m going to bed because my brain and my heart are just so overloaded with the events of today and we have decisions to make but so much conflicting information. And at the heart of it is this little boy who is just so sweet and loving and overly trusting and who sounds like a freaking genius but the reality is he cannot practically use language to communicate. He doesn’t converse. He announces. He may be on the ASD or have Aspergers (scored “highly probable” in both) but to have the specialist look at him we have to take what is a leap of faith for most parents, but we also know we can’t do that. We also know the nuances that make our kiddo unique and wonderful but also make him eligible for these services, also put him at risk for many of the ills of our school system, and of course, our district says our concerns are unfounded but apparently they *have* to say that or they just don’t read the freaking newspaper. Meanwhile, they follow the “hear no evil, see no evil, speak no evil” theory that occasionally gets broadcasted by a frustrated and angry parent but then disappears from view before anyone can actually view it. Also, I just can’t block out the comments on most of the articles about autism and special needs and discipline in our great state of Florida. The overwhelming majority of comments are from people who think that autism, Asperger’s, and the like are nothing more than bad parents and spoiled kids. Some frustrated mom of a kid with autism said “if your kid had cancer, would you try parenting them into remission”….

Anyway.

On most days I am a mac.

Today, I feel like a PC.

And I really need to reboot….
xo
b

ps. the chest in the picture was made by my oma for my childhood dollhouse. I didn’t know she died yesterday. But out of nowhere Alex went to explore our shelves and my treasures, and picked this up…Then he picked up my little glass/mirrored cube with my Swarovski hedgehog/porcupine and birthday cake- gifts from Julie, (dearest friend and my birthmom,) Julie’s mom, my biological grandmother, died before Julie found me. She loved glass and funky jewelry. Alex was intrigued. I was reminded of how interesting life is and how it reconnects people and spirits in the strangest ways….

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