Tag Archives: disabilities

Ten Tips… An Autistic’s Advice

5 Dec
Tomato Tomato.  It's only different if you say it aloud.

Tomato Tomato. Lets Call The Whole Thing Off....Doesn't work so well when typed.

A fantastic list of 10 tips for teachers, that really should read:  Ten Tips for Everyone.    Every person that interacts with the world, in any way, shape, or form will come in contact with a person with autism at some point and probably more frequently than just once or twice.  For that matter, every person does come in contact with people with various disabilities, some of them “invisible disabilities”… So yes, everyone should read this and mentally slather it onto their brains as “Ten Tips to Mindfully Communicate With Your Fellow Humans, Especially the Ones Who Seem To Be A Little (or a lot) Off Center In What You Consider To Be ‘Normal'”. 

My apologies for using that “N” word.  Most of you know that I find that N word to be outdated, on an even keel day, and mythical on the other 364.

Clickety click the link below, and check out the tips.

Please comment below if there is anything you would add and if you have examples of people doing the opposite… Me thinks it helps to bridge the gap between us and them when we can share examples.  Too many of the folks not living with disability or a difference that impacts every single morsel of their lives, think that discrimination and just plain douchey behavior doesn’t happen anymore because “people know better” and “there are laws” and when we do share our stories with others we are often told that we just misunderstood or worse, that clearly we have a chip on our shoulder.  Gee. Thanks made-for-cable-TV movies and sitcoms. Stereotyping us as bitter-because-of-our-physical challenges or extra-sweet and gullible because of mental and emotional ones, either keeps folks away or lets them feel no guilt whatsoever when they slip on in and take advantage of us.

Those of us who live with “it” everyday know that the treatment of people with differences and disabilities is like Betty Crocker’s iconic female face.  The clothes have changed.  Makeup and hair have been updated.  But it’s still a box of cake mix.  Capisce?

Here, as promised way back in the beginnings of this post, is the link:

An Autistic’s Advice: Ten Tips for Teachers.

xo

B

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Just keep swimming. Just keep swimming.

13 Jun



Pedal

Originally uploaded by CleverIndie

Physical Therapy (for me) ended yesterday.

The loss of my only undivided me-time has brought up many things.

Lots of tears.

This was my first break in almost 6 years. I had 18 hours where I wasn’t in charge, out of almost 50’000 on duty and on high alert.

I’m exhausted. I’m angry.

The true colors of some people are really shining through, and not in a good way. Having a not-readily-visible disability and a child with different needs brings out the narcissism in other people. It’s partly the myth of the supercrip. It’s partly their choice to live in denial. It’s a whole lot of their narcissism. If they don’t accept a fact then it doesn’t exist. It’s like “La la la let’s pretend everything is ok and then it is! And if it isn’t lets kick the person when they fall to the ground and then call them negative when they tell us to stop or start to cry! She’s dead from our kicking? She is cured of her disability! Isn’t positive thinking grand!”

Ok. A bit of sarcasm (just a dash, right). But I don’t feel like boring you with back story. And positive thinking is wonderful. It’s the kicking and the holier than thou-isms that I have the problem with. It’s also the living in denial part- ever wonder why disabled folks are often depicted with a chip on their shoulder? The loss of certain abilities eventually (over a variable passage of time) becomes accepted fact, but the bitter pill to swallow is the loss of family and friends and the feeling of being tricked, cheated, resented, and lied to by supposed loved ones who invent their own truth rather than bothering to listen to the one person who has experienced it. Try trusting anyone after people who were once at the very core of your world and your family decide what you can and cannot do, not based on any reality except their own needs, and if you try to explain you get labeled as selfish or lazy or negative. And if you do what you can to help them with their needs it is never enough. Any which way, you wind up being judged rather than accepted.
It’s a losing battle. I feel stupid for even trying to fight it. I have to learn to conserve my energy and to say goodbye to those who cannot see past their own noses.

I’m in that really weepy (ok, sobbing) part of building up to cutting off my hair (not really going to hack it off, yet), blasting “The Warrior”, and moving stompingly forward.

But I’m tired and my body really really hurts.

No support for this broken body.

Fact. Not whining. Not negativity. Just fact.

I’m putting this out into the universe because my voice is hoarse.

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