Tag Archives: county

Priorities…

28 Oct

Hilarious.

Originally uploaded by CleverGirlBek

On the front page of News-Press.com this evening…
“Fort Myers Bank Robber”
followed by
“The Lee County Sheriff’s office is looking for a bank….”

Difficult Day…

14 Oct

Love Oma…

Originally uploaded by CleverGirlBek

Had the eval review with the county education folks…

Kiddo has significant impairment and they feel he needs to be in a classroom dedicated to special needs and social communication and fast.

They are suggesting a school that is at least 30 minutes away….That’s 2 hours of driving. 5 days a week. Full days.

They said he can start tomorrow if we can get the public school enrollment stuff together by then.

Finally the psychologist said “or we can work on a gradual transition”….

Lots of leg work to do…

Lots of information to understand…

Lots of lack of funds to keep him in his current school and beef up his therapies and total lack of support from the school district unless he is in the intensive setting.

Frick.

Called my dad to talk about something else and just kind of let it all out.

I mentioned something else about my mom and he mentioned that she has other things going on, since her mom died.

Yes. My Oma died, apparently, on Monday. No, it wasn’t unexpected. She has a major stroke a month ago and has been in a coma and receiving hospice care. She lived in Germany. When I was a kid we visited her and Opa every summer in their tiny little storybook town.
When Alex was born, my mother wouldn’t let me send pictures to Oma in the home, because Oma didn’t want pictures of the baby taking up space. Ouch. Have I mentioned the narcissistic control of information in our family?

Anyway. I’m sad. I’m overwhelmed. I’m having a really hard time functioning right now. Part of me wants to pour my wee bit of energy into my raw materials. But the rest of me just can’t move. It’s like when you overfill your cereal bowl as a kid and then put the spoon in to get a bite and…well, you get the picture. My head is at maximum capacity. I’m fixed on one spot. Eyes wide. Tears arriving at regular intervals.

I’m going to bed because my brain and my heart are just so overloaded with the events of today and we have decisions to make but so much conflicting information. And at the heart of it is this little boy who is just so sweet and loving and overly trusting and who sounds like a freaking genius but the reality is he cannot practically use language to communicate. He doesn’t converse. He announces. He may be on the ASD or have Aspergers (scored “highly probable” in both) but to have the specialist look at him we have to take what is a leap of faith for most parents, but we also know we can’t do that. We also know the nuances that make our kiddo unique and wonderful but also make him eligible for these services, also put him at risk for many of the ills of our school system, and of course, our district says our concerns are unfounded but apparently they *have* to say that or they just don’t read the freaking newspaper. Meanwhile, they follow the “hear no evil, see no evil, speak no evil” theory that occasionally gets broadcasted by a frustrated and angry parent but then disappears from view before anyone can actually view it. Also, I just can’t block out the comments on most of the articles about autism and special needs and discipline in our great state of Florida. The overwhelming majority of comments are from people who think that autism, Asperger’s, and the like are nothing more than bad parents and spoiled kids. Some frustrated mom of a kid with autism said “if your kid had cancer, would you try parenting them into remission”….

Anyway.

On most days I am a mac.

Today, I feel like a PC.

And I really need to reboot….
xo
b

ps. the chest in the picture was made by my oma for my childhood dollhouse. I didn’t know she died yesterday. But out of nowhere Alex went to explore our shelves and my treasures, and picked this up…Then he picked up my little glass/mirrored cube with my Swarovski hedgehog/porcupine and birthday cake- gifts from Julie, (dearest friend and my birthmom,) Julie’s mom, my biological grandmother, died before Julie found me. She loved glass and funky jewelry. Alex was intrigued. I was reminded of how interesting life is and how it reconnects people and spirits in the strangest ways….

Rubik’s Confusion

27 Sep

Rubik’s Confusion

Originally uploaded by CleverGirlBek

Finished the language and speech part of kiddo’s evaluation with the county folks…

Turns out he’s on the upper end of the average range or above it on all things.

Except one.

In receptive language he is severely impaired.

While we had a bunch of work to do before this, now we can focus a little, but I feel like we are snowed in and a little panicked…

Even though this isn’t really news to us. I mean, the term “receptive language” and all of the other language stuff is, well, like a foreign language to me. We knew something was going on, we still don’t know what, but at least we have some validation to our observations which is little comfort, but at the same time, I am forever second guessing myself in a way that I’m going backwards from acceptance and I’m trying to reach for denial with all of my might so maybe I can just curl up with kiddo there and pretend everything is 80’s sitcom normal. But I never get there. And I’m really tired. We could all use the break. But there are no breaks in sight…

So the eval (we haven’t had our formal review yet) was on Thursday and on Friday I came home from a pharmacy run and boy told me a story. Then he told me another one. My little boy stood there and very slowly and meticulously told me something that happened in his day. There was a beginning, a middle, and an end.

He is five.

He told me that he came home and there was a box from amazon.com on the chair. He told me that he looked inside and it was empty. He told me the box didn’t belong on the chair. He told me that he brought the box to the recycling bin. He told me that with Daddy’s help they smashed up the box and put it in the recycling bin.

It was the most gripping account of anything I have ever heard in my entire life.

My little guy doesn’t tell stories. He doesn’t have conversations where he is an active participant in the dance that is a conversation. He blurts stuff. He collects facts. He runs into the room and announces that “The big radio at Target looks like a face” and runs out… He is random yet structured in every part of his life. He does not tell stories. He does not answer questions.

Later that evening I was snuggling with him in the big bed before story time. I asked him about school and the other kids. He has been having a hard time. I asked him why he couldn’t finish his lessons in class today (according to his teacher via my husband).

I expected nothing, except perhaps a change of subject. Lately, his obsession is smoke alarms and fire sprinkler systems, so I was expecting the step by step run down of the sprinkler trigger mechanism.

Instead, he told me- slowly and step by step – that one of the younger kids came over and took his blue colored pencil and broke it so he could not do his lesson.

I was floored.

I asked him if he told the teacher and he said no.

We talked about what to do next time something like that happens.

Of course, from what I know of the way his brain works, the solution we discussed can and will only apply to the very same situation, with the very same child, and the very same lesson, and the very same blue pencil. He is very literal and rigid about these things.

But he told me, and we talked about it.

Today everything was back to the usual. The three of us are just so shell shocked with everything in our lives that we were all pinging off the walls and irritating each other.

But that one glimpse of his problem solving with the box, and what happened at school, are gifts I will not squander, for their rarity is unparalled.

Hopefully, when the rhythm of school begins again in the new week, we’ll be able to have more of these talks.

I don’t think he is understanding it yet, but I think he is working on memorizing conversational and story patterns…If that is the case, I can get that little glimpse into his school day, that may help him more than anything else…

And, faithful reader, if you have read this far, you are probably wondering about the picture…

Hubby was taking a picture of kiddo with his new Rubik’s Cube (he can’t mix up the colors, it will put him over the edge and if he finds out the stickers come off none of us will ever sleep again….) and told him to hold the cube in his hand…

So he is holding the cube in his hand….

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