Tag Archives: chronic illness

Day One.

15 Jan

Didn’t resort to bubble wrap today.

But I have a fever.

And once again, today, Alex and I were bumped to an even lower priority in our little family/pod.


But on a positive note, Alex told me that SD cards have the information you save on them written in ink- really tiny letters and photos stored on the inside of the plastic shell in ink. Love it!  And my sugars were insanely awesome today.  Only 6% of readings were above target today.  Lots of lows and near lows, I feel like I ate my weight in Honeybell oranges, but didn’t have to bolus to cover meals and snacks at all. Weird. But I’ll take it!

And our meeting at school was rescheduled for next week… So transitioning Alex isn’t going so smoothly, as we can’t plan for anything without having a meeting to discuss the transition with his teachers…. Wish we could plan. I want to make this change over magical for him, as it’s a major milestone.

Happy Friday folks!




16 Apr

Having a difficult week here… Everything out of sorts…

Baldguy is in Kauai for Winner’s Circle (Gartner’s sales award)…It’s an all expenses paid vacation… He took our old friend Kim (Kim is a dude, by the way…Of course now I realize why so many people were confused about how I was ok with baldguy taking another chickie with him. But yeah, Kim is a guy. A really awesome guy who we have known from way back in Baldguy’s days moonlighting in a video store up north.)

Everyone keeps asking why I didn’t go. The truth is, I really wanted to go. My hip isn’t as bad as it was when he received confirmation that he had qualified for the trip- and the hip was a worry as I wanted to explore Kauai as actively as I possible could. I’d still need some modifications to handle my physical issues, but we would have had some serious fun. After all, the last time we took a vacation was the year after we were married. We drove from Boston to Burlington, VT. We were gone for 2 days. We stayed in a hotel we found on priceline… I think it was $50/night. We felt so decadent.

Imagine how we would feel in Kauai, at a very expensive resort with every expense paid… Wow.

But someone needed to stay with kiddo. We don’t have anyone that will watch him and keep him safe, not here. And we are making little bits of progress here and there… Leaving him (yes, for the first time in almost 5 years…not because I don’t recognize the need for time apart, but because the logistics are insurmountable) would have set us back so far in regards to progress, and taking him wasn’t an option (no comment). I let baldguy work on the logistics of possibly going as a family (baldguy’s idea) and was told that it couldn’t happen. I think it could have happened with some planning, but I have been focusing on the day to day with the kiddo, so I delegated and these were the results..

Hopefully, baldguy comes back refreshed and rested and ready to help tackle this beast that is our family life. Because I’m having a hard time holding onto the little bit of me that I finally found again after so long (my need to create) and managing the day to day things and staying on the various regimens that everyone tells us boy needs and that I see are helping him make progress. I can hope, right?

Huge hugs… Tough morning…Tough day yesterday with kiddo.


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