Tag Archives: charity

Surfers For Autism

4 Nov

We had the best day ever on Saturday.  Seriously.  EVER.

Biggest thanks ever to Surfers for Autism, the surfers, the founders, the volunteers, Fort Myers Beach, and FMB PD & FD.

I’ll be updating this post as I sift through the 789 images I took on Saturday when we were guest of Surfers for Autism.

They say that we (people with autism) are “Rock Stars”  so if we are, then I’d have to say that knowing them and being there with them on a gorgeous Saturday on Florida’s SW Gulf Coast was like the worlds most epic fantasy jam session ever, because we think they are worthy of the title as well.  Seriously.  If you had three wishes and could wish for anyone to play together, for you… That’s the fantastic and awesome I am trying to express here.

Where to begin…

We rarely go to the beach as days off and not-too-sick days rarely line up.  Also, the beach is sensory overload wearing a disguise that suggests that she (the beach) is a serene environment, but for us it can be overload starting at the application of sunscreen and escalating from there.

We did it though.  We went on Saturday.  I have proof!

Before the first run of the day:

Fort Myers Beach FD brought over a truck and handed out paint! Everyone painted and tagged! It was great fun and quite a masterpiece!

Alex painted these words on the wheel well trim: fire, 911, emergency, truck… I found a blank spot and painted his name, some hearts, and an orange penguin.

Alex didn’t know where to start so I told him, “just find a space that doesn’t have any paint and start painting!” So he painted words (you can see 911 in this image) and then he proceeded to paint all of those little rubber feely-bobber hairs on the tire orange. Nobody else had thought of that! (by the way, those feely bobber hair things are left over from the injection molding/tire making process. The NASCAR peeps have to cut them off their tires! Ahhh Viva La Google!)

Alex’s first surfers/guides/volunteers. The dads on the short kept commenting, “Oh that kid has it rough! Three total babes in bikinis!” It was pretty funny. They weren’t just gorgeous, they were incredibly patient and kind and warm and really made Alex feel so secure in that new and alien environment. I’m very thankful (for his surf goddesses! :-) When he came back to shore he had two more with him! One of the dads said to me, “That kids got talent!”.

For his 2nd run, he had another two fantastic guides. Corey and Marlene Lilly. Corey looks uncannily like Russell Brand and I was surprised when he spoke and his accent wasn’t British. He’s a really kind and mellow guy. He finds and picks up sand dollars with his feet. He brought one over to show us. I’ve never seen a live one… Corey also stopped by Alex’s sand digging extravaganza and talked to him and his dad.  And remembered his name.  These surfers, these volunteers, are brilliant at making each person feel wonderful about the experience.  Alex had a good second outing with Corey and Marlene and he was definitely more relaxed and chomping at the bit to get back in the water! After this we had lunch. Alex’s Oma (my mom) showed up just before he went for his 2nd paddle. We were so excited that she came by to see him surf!

That is my kid STANDING UP and SURFING and nobody is holding onto him! He stood up from his paddling/kneeling position, unaided, with the board gliding toward shore! I know! I was doing fine most of the day but that was it. I let my camera drop around my neck, started flapping my hands and started to cry some very happy tears and cheering loudly. His guides from the 3rd outing are not seen here but they were two guys named Jeff and Jim (or Bill. Spoken language keeps getting more challenging for me over time. It sucks, but it’s also a positive because it makes me more sensitive and aware when delivering any information to Alex who has a similar challenge).

I made this for him today:

Yeah.  I’m still getting goosebumps when I think about him surfing into the shore, with his hands out.  He amazed me.  He amazes me each and every day and has since he was born.  It’s not that I think he can’t do something, because he can do nearly anything he puts his mind to.  That being said, he can’t be neurotypical and neither can I.  We can put on an act that works in some situations, but that’s not us.  Surfers For Autism  has an incredible calm to it, that I rarely feel when with anyone other than my kid or by myself.   The reason for the calm, in a very large group of autistic people and their families, is that everyone there can just be themselves.  We pulled up to the lot next to Crescent Beach Park and I saw 5 kids in maybe 15 feet of sidewalk flapping and walking tiptoed.  I said, “It’s going to be a good day”.

And it was a good day.  It was the best day we’ve had in a very long time.  We deserved that and I will treasure that feeling probably forever, though we will have days to match once the 2013 Surfers For Autism season kicks off.

xo

B

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Hello Friend.

26 Dec

Hello.

Originally uploaded by CleverGirlBek

Boy’s big wish from Santa this year was for an “xo laptop”…

We decided to tighten our belts more, suck in our guts, and instead of a mountain of less expensive goods that get lost in the shuffle, get him one through the “Give One Get One” Program.

The benefits are many.
1. We bought one, the one that we gave will go to another child somewhere else in the world as an educational tool…

I love this idea, but our home economy doesn’t really allow for this degree of charity… After all, almost all of our money, goes to directly support individuals with type 1/juvenile diabetes, arthritis, autism/asperger’s, and depression and a slew of other issues.  When looking at the cost, the “2-fer” part makes it look positively cheap… When looking at the reality that we just get one for $xxx it is still a wise investment as it will help boy with skills in all areas. Sure we could do that on our regular computer, but that would wind up in lost time and money (on hold with customer service, having computer serviced, possible emergency intervention by Geek Squad) and the cost quickly (trust me on this one) takes care of itself…

2. Our mac may now be safe from the mad clicker/deleter…. He has no interest in our boring mac’s.  He has a swanky, rugged looking, very useful machine that we are not yet regulating…(the xo will have to go on the same “time bank” as other activities, but we are giving him another day to explore…)

3. This is an adventure for all of us- we are mac and ex-windows XP people…So we have quite a bit to learn…The “xo” let boy jump right in and explore… So far he has drawn pictures, made digital music, written some bits for a story he is working on, played “secretary” with me (he dictates, I type…), and made the speech emulator say “Who farted?” followed by a laugh that he had to spell out…He also took a bunch of photos of himself. The amazing thing is that we didn’t show him any of it. We showed him how to open the case and shut the system down, but that is it. He is learning this new-to-us OS the way I learned mac… Marie Montessori is smiling down on us…

4. I tried to explain the “give one, get one” thing to him and the intentions of OLPC, and his interpretation seems to be that there is a kid, elsewhere in the world, that he is connected to because they have, in a way, twin computers. I think his perspective is somewhat like my own at his age- do you remember those “for the less of a price of a cup of coffee” from back in the days when a cup of coffee was less than $0.40 commercials? Well, I wanted siblings when I was a kid and I was adopted. In my brain this equated to being able to buy a sibling for $0.40/day. I remember rolling coins for my mom on occasion and thinking, “Wow. This is like a month of a sibling.”…I digress…

Speaking of the concept of “other” and a world without boundaries, I know it’s probably not possible (or way far outside of my noggin to even think about without sweeping some other important stuff off the table) but it would be amazing with the give one get one if participants on either end could opt into a penpal sort of a program (via the xo, of course)…

Anyway, here is boy waving and saying “hello” to whatever friend may be out there….

(and check out that sweet swiveling screen! I have already been informed “Your Macbook screen just sits there”… :-)

Anyway, there is more to chat about regarding our Christmas morning, gifts, mayhem, etc…But I am going on day 2 of being in bed (boy is sitting on my bed in the photo…he grabbed his laptop and sat right next to me with our CushTops/lapdesk-y things and we went to “work”….

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