Tag Archives: care

A Letter to Patients With Chronic Disease…

18 Aug

I think this blog entry, from distractible.org, offers an interesting perspective… Food for thought for those of us living with chronic illness and food for thought to everyone in the medical profession who may come in contact with PEOPLE with chronic illness.  I do suggest that folks who think that those of us with chronic illness are just negative and whiny, especially about the medical profession, read the comments after the letter from Dr. Rob.

Be sure to add your comment there, or here. That is totally up to you, my dearies :-)

Here’s the link:

A Letter to Patients With Chronic Disease.

xo

Bek

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Stay of Execution

21 Mar

This feels like a stay of execution.

This busted body is fading fast, but now maybe it can get the care it needs to stick around a little while more and advocate for my kid and his special needs.

Grateful.

xo

Bek

McCain’s Choice of Writing Implement.

15 Oct

“I should use a pencil. No, doesn’t feel right. Pencils can be erased. I voted against pencils in 2003. When Senator Obama was a third grader he used a pencil….
I should use a pen. Yes. Joe Plumber uses a pen to write his estimates and handwritten receipts when he is fixing soccer….um… SoccerGrandma’s pipes. There is nothing more permanent then a pen. Soccer. What would a groundbreaking individual write with. David Beckham writes with a sharpie. I have seen the commercials on the seat back TV during my many flights to many foreign places. Obama has never been to any foreign place. Where was I? Beckham. Sharpie. I’ll write with a sharpie. I’ll hold it so the name is visible to Joe Plumber at home. It says non-toxic. It’s a health product. All American’s are healthy. Sharpie. That’s it. It’s permanent. It’s bold. It’s the maver….best darn tootin’ pen Mrs. Sally Beauty Supply would want.”

(ok. my monologues tend to be lengthy…but maybe I’m just bitter because my health insurance  does cost $17,400/year (for a family of 3) because of my pre-existing, non-preventable condition….)

**Please note that none of this was really said (to my knowledge) by anyone, except me.  Of course there is the monkeys and typewriters in a room theory, but they tend to have less scattered thoughts than I do.  This is opinion, it is mine.**

Candy!

19 Jul

Candy!

Originally uploaded by CleverGirlBek

Cufflinks! Not really edible…Well, unless you are a vintage lucite and sterling silver chomping creature, I guess…

Anyway… New pieces being added over the next few days and a few old favorites revisited….

Hope everyone is well!
Giant hugs!
B

p.s. MRI came back “unchanged” since my last one- phew….good news… Of course that just means that the docs may have only been looking at my old MRI… But today I am feeling a little better and only when I move a certain way does it really kick up… So hopefully tomorrow I will feel even better….

Wood You?

17 Jul

Logs Logs Logs

Originally uploaded by CleverGirlBek

Like to see my new vintage glass with the reflect-o-matic sterling silver treatment…Glows….

Trying to upload photos and descriptions for a few new pieces….

Anyway, I may be blogging more in the next few days… I have been stuck in bed for the most part all week. While it sucks that baldguy lost his job and our unemployment rate here is pretty miserable, it was good timing as he is keeping after boyo and fetching me provisions.

Something is very wrong in my back and I am trying to figure it out…
I had a big bad emergency spine surgery 12 years ago and the pain is near there…. I fear another infection or that perhaps the vertebrae are finally squashing some nerve… Anyway. It really freaking hurts.

But, I can stand still and type and I feel ok, for the most part….And I’m not a wuss. I have had pain every day for 12 years. But dull, achy pain is one thing, feeling like someone is chiseling into your spine and ribs (on just one side, thankfully) is another.

So here I am…

Had an hour and 15 minute long MRI this morning but won’t know anything until they decide to call me. Medicine is so lax down here it’s ridiculous, so I’m not holding my breath for an answer. When I had the parathyroid tumor two years ago the docs suggested we use a “wait and see” approach. I wound up doing a boat load of research and demanded the scan to see what was going on and then I found my own surgeon to schedule the surgery(Dr. Norman’s Parathyroid Clinic in Tampa- amazing surgeon…). Wait and see. Those things don’t just disappear- they are there and they cause problems until they are removed or you die from the freaking side effects (heart issues, digestive issues, liver issues…yikes!)… So I’m none too confident about my medical care here…If whatever this weird back thing is needs anything more invasive than an alcohol swab I’m heading north for a spell.  If this is another bone infection, I’m worried.  Last time they didn’t find it until I was in ICU, on all sorts of apparatus, in a coma.  No more comas for me, thank you very much.  One was more than enough! I have to be here for my little guy.

Anyway. Here I am….Trying to stay as still as possible while my brain wants to run around doing a happy dance because the new issue of BUST magazine is coming out next week and woohoo! one of my pieces is in the Etsy co-op ad. Yay! So buy a copy and check out all of the shops.

Ok. Going to grab some tea and go be as still as a rock in front of the TV.

Sorry for the kvetching. I’m in a good mood really I am!

Hugs, albeit very gently frame-y ones, all around…
xo
b

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