Tag Archives: based

Dr. Literal, Mad Scientist

4 Apr

Raaaaaaaar!

Originally uploaded by CleverIndie

We are so used to Alex taking everything so extremely literal, or having a rather drawn out reaction (he’s a worrier) to things that are even slightly out of place that we really do what most folks would call “overthink” when it comes to daily activities, gifts, even clothes.

I’m guessing that most parents with kids with ASD or Asperger’s or anything under the PDD header go through this as well. I hear complaints about it and how it’s “abnormal” from my mother (her word not mine) but really, we don’t have much of a choice. It’s not that we spoil him so he always gets his way. We do take preventative measures with some things- we brief him before we do anything new.

I’m sure any parents of non-ASD kids make sure they have batteries for the toy they are giving their child as a gift, or else there could be some serious fallout (especially on Christmas morning, or if there is a sizable quantity of sugar involved).

We are that prepared for everything. It’s getting easier, as we have been working our behinds off with Alex, trying to improve his flexibility, self-soothing skills, and creative problem solving. He has come so very far- we can now crack the occasional joke and he will laugh or even if its not funny (joke delivery is not one of my well developed skills, I confess) he won’t break down into a full on freak out that takes over an hour to calm him.

Recently, he became the proud owner of an Easy Bake Oven (for use only with us, of course) -the image clearly shows a digital clock on the box- so I read every mm of that box for the words “simulated digital clock” or something similar. When we got home and unpacked it we found out it is a simulated clock, we braced ourselves, but Alex announced he could use my little kitchen timer instead. Phew. Big sign of relief. This is a kid who has been carrying around my old, broken cell phone for 2 years and until recently would not play telephone with it, but would follow me around trying to calmly explain that all it needed was to be charged up and as the grownup it was my job to plug it in, in complete denial that it was completely busted, and then would have a meltdown when we took it off the charger and it still didn’t work.  Recently though he started clipping it to his pants and paces around talking to various people on it. He is pretending, this is huge. He’s really into it- to the point where  he’ll say “shhh, I’m on the phone” with his hand over the mouth piece, if we are repeat offenders we get nasty looks and occasionally the suggestion that we will get a time out if this interrupting continues.  I’m so proud of how far he has come….

Just when I was thinking that we are out of the woods on maybe one little thing, we had another literal interpretation incident though that really drove home the recognition of what a strange place the world is, as a sum of all of it’s parts -particularly those with marketing and advertising people behind them.

From the bathroom I hear (Alex is an announcer. He narrates every moment of every day, repeating much of it a few times until someone acknowledges what he said by repeating it to him, at which point he will correct them or act angry as though we can no longer discuss the topic at hand.)

“I’m using the water to make the bubbles go away, but it keeps making more in my mouth”

Then he comes around the corner and he’s wiping out the inside of his mouth with a hand towel.

He announces “Oatmeal and Butter, I didn’t taste the butter, I don’t think there was butter in there. Is there butter in there?”

Our child, who approaches even edibles with great suspicion, apparently saw the new soap pump next to the basin and his brain interpreted the soap to also be a snack- one of “oatmeal & butter” which are two things that he really likes, so he squirted a bunch of the “oatmeal & shea butter liquid hand soap” in his mouth.

Yes, I realize we are very lucky that it wasn’t something toxic. He has been making great strides in reading and he is very rules based and a very cautious guy. We have had other tasty sounding soaps (milk & honey, almond, grapefruit, etc) that he never would have thought of tasting, so what made this one different? On the bottle it has a photo of a bowl of shea butter (all whipped up, could easily be seen as regular culinary butter) with a pile of dry oatmeal sprinkled around it. The other soaps we have had, that had culinary inspired fragrances, only had the names not the images- Alex reads very well, but as a kid who usually needs a visual reinforcement, the snacktime liquid soap from today really had him thinking he was in for a tasty treat that he could not resists (other household cleaning products don’t interest him at all- never had, they are locked away, of course… He has his own small spray bottle of water, vinegar, and lavender oil that he cleans his desk, snack tray thing, and step stools with).

By the way he said the soap didn’t taste so bad. Good to know.

From now on we will be using a refillable dispenser, and when shopping I now know to avoid anything non-edible with an image of foodstuffs!  Oddly enough, when I was very little I was threatened with having my mouth washed out with soap around the same time I learned the term “acquired taste”, so I would eat Ivory soap (and occasionally dove, depending on where I was in the house) a little fingernail sliver at a time.  I think I assumed that if my parents swore so much that I would someday speak like that as well, and I wanted to be prepared.  Imagine the horror on my mother’s face when she said she was actually going to wash my mouth out with soap and my response was to grab the bar and take a large bite out of it without flinching.

Anyway, hugs all around!

There are a few new pieces in my Etsy shop… Still on my crazy medical journey…And still getting the new blog just right so I can have a good and proper blog-warming!

xo

Bek

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Alex & The Time Machine

25 Feb

Alex & The Time Machine

Originally uploaded by CleverIndie

I was attempting to nap yesterday afternoon, as I was wiped out from the MRI contrast and as I had to take off the dexcom for the MRI I took the opportunity to test out my old (not expired, just previous) pain meds, which made me quite drowsy – which I do not remember, so maybe I was just drowsy because the pain was low and so manageable…  My eyelids fluttering closed is the signal for kiddo to find the noisiest game or toy to play at this end of the condo, while hubby disappears into the bathroom or suddenly is compelled to do something that he has had years to complete but right now he cannot he break focus from it.

So I usually don’t wind up napping.

Once I was out of bed, and annoyed, kiddo decided that he was going to nap. And he did. We could not get him up for dinner, homework, nothing at all….From 5 until 11 he napped…Jeff carried him to the bathroom at some point and decided that Alex was down for the night and closed his bedroom door…

At 6am today there was a very distressed little boy climbing into our bed. He was losing his marbles because he missed dinner and now the sun was coming up. Alex is very rule and schedule based. The world ceases to turn for him if something isn’t complete, like a ritual, like dinner. The new day starting without him having eaten dinner is somewhat like if you made a non-PDD kid go to school sans clothing. (assuming the non-PDD child isn’t in love with their nakedness the way many in the 2-4 year old set are, of course)… It’s not right, it’s not how things are done.

So he lost it. He sat on our bed and wailed as though someone has stomped on his heart and the pain was unbearable. We had not caught on just yet, and tried to tell him that it was ok, that clearly his body needed rest more than dinner and if he was hungry we could make him some toaster waffles.

But he needed dinner.
And the sun was coming up fast.
And the screaming grew louder.
(sorry to our understanding neighbors who never complain…you have no idea how much we appreciate your kindness.)

I toasted some waffles. Alex looked at them as though they were a squirming platter of venomous snakes.

Finally, absolute brilliance struck Jeff.

He declared that it was still night in our house. He shut the shutters, dimmed the lights, he heated up a slice of pizza and called Alex to have dinner in the den. Alex still wasn’t buying it, but he was willing to listen.

Jeff jammed a few bites of pizza into Alex’s mouth. Alex calmed down and declared that hey could now have breakfast.

*sigh*

But Jeff knows that Alex is more detailed than this and this freakout could potentially drag on for the entire day, or even days. Alex requires so much structure, but the world doesn’t always cooperate. We have been here enough to understand a little of how Alex functions, even if this is one trait I do not share with him, I am his mom and I see how his breakdowns become more than mental or emotional, they edge into the physical (when he was a baby we thought that the crying it out thing was still within normal realms when he was still crying after a few hours… and then he’d vomit… that was a clue that what works for some probably wouldn’t work for us, and not because any of the parties involved were being indulgent, we had a different kid, for better and for worse…This was one of our first clues…I wish we could have interpreted it appropriately…)

Alex’s favorite “game” these days is “time machine”…He pretends that Jeff’s walk in closet is a time machine (it has a sliding pocket door, that fits Alex’s description of a time machine)… Jeff finds it funny that Alex’s time machine doesn’t actually travel through time- but it does go to the moon, to the master bedroom, and to target so we can get more Annie’s Mac n’ cheese in the family size box (yes, this is one of Alex’s gems)….

This morning, Jeff saw the opportunity…He grabbed Alex’s hand and said “no! You can’t have breakfast yet! It’s night! You just ate dinner! We must go to morning! To the time machine!”

So we all got in and Alex pressed the appropriate buttons (pretend buttons) and made the time machine sounds… When we “arrived” he opened the door and stepped out and declared “Good Morning!” and was giggly and happy, like any other morning….

Needless to say, I’m putting “time machine” on our list of tools (which I will share, dear reader, soon…promise)…

The picture on the left is a chalk/chalkboard drawing hubby did of Alex in his time machine…He also made him a “pop up”/moving parts card of the time machine for christmas… There was a home depot gift card inside for Alex, so the two of them can build a model of Alex’s time machine…

I love the two of them so much….

I hope you have a wonderful day…. Perhaps if it’s not going your way, you could try the time machine trick? :-)

Best wishes,
xo
Bek

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