Meanwhile, back at the factory…

12 Oct

The snot factory, that is.

Poor kiddo has a nasty cold and a temperature.  Needless to say, nothing is getting done- no rest, no work, NOTHING.

I’m amazed his voice hasn’t given out as he had trouble sleeping last night due to the very sad passing of a classroom pet (Finchy, the Zebra Finch) over the weekend.  He has dealt with death before, but had never seen something dead, at least as far back as he can remember.   I went in to take his temperature and he woke up and wanted to snuggle.  He looked like he was trying to cry, but he said he couldn’t.  I told him that the tears would come when he was ready and they don’t always show up when you think they will.  We sat up for a few hours eating apple wedges and toast and warm milk and then he snuggled in for approximately 4 hours of sleep.  Of course, he got me right up with tales of phlegm.  At some point baldguy got up, got kiddo settled with his listening therapy/headphones, and then went back to bed.  I was standing in the kitchen like “hello! where do you think you are going?”.  But it was too early to argue, so I made a loaf of oatmeal-brown sugar in the bread machine and left tea in the microwave (again).

Anyway, I finally got the approval for Cimzia!  Hopefully tomorrow I will be able to start.  Fingers metaphorically crossed. I’m also design-geek elated to see the OXO Good Grips syringes that they are dispensed in.  I’m not so excited by the copay but I don’t mind the $150 so much when I see that insurance is (so far) picking up the rest of the $3000+/first month tab.  Of course, $150 is still a pile of money, but that can be charged (as much as I hate to do it) whereas the $3000+ would put the hope that this treatment will work on my RA symptoms completely out of reach.

I won’t put all of my hope on this treatment, but the chance that I could feel better is worth a shot (or 2 shots the first week, and in two weeks 2 more…)

Today the boys and I assembled most of a Toy Story lego train set and it’s only in fine motor work that I realize how bad things have gotten with my hands.  I can type, no problem.  But pincer grasping and Legos are definitely off the table (step carefully! those things hurt like hell!) until I regain some dexterity.  Or until they start making cooler Duplo sets as those seem like they are just the right size for these old hands.

Other than that… No new adventures to share right now, but a new day begins in a few hours.

xo

Bek

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