Tag Archives: school

Tiny Drawings

6 Nov




Originally uploaded by The Happy Aspie

Alex hands me his completed homework & announces “I like to draw a picture with my name. I draw a different one everyday. Today, I made a square wave, sawtooth wave, triangle wave, and a sine wave.”

Whoa.

These things are tangible and for him, they come easier than multiplying single digits.

He also vocalizes the different sounds which correspond to the various waveforms.

I’m officially lost but not as far lost as when my last math teacher attempted explaining the concepts to me ad nauseam. I get it more now.  Maybe. 

Thankfully, this kid has great patience for his Mama, when it comes to sharing what he has learned thus far.

Whoa.

Say Cheesssssssssssssse.

30 Oct

Behold, the Cheesssssssy Bread that I conjured up for Alex’s Halloween luncheon at school…

I was thrilled that I was up for making something from scratch for the festivities, and also grateful that the Vermont Cheese Bread recipe in Artisan Bread in Five Minutes a Day had proven itself to be an easy beast to get just right, and also one that I could tweak a little bit without *poof* complete kitchen disaster.

In this case, I stretched the dough into a large rectangle.  I then sprinkled even more cheese over the surface (the recipe says to use good cheddar, but I made this with the part skim kraft shreddy stuff the first time around and the taste was pretty nice- tasted, with the slight sourness of the dough, more like the asiago bagel of my ABP frequenting days in New England)… Then I rolled, stretching the dough even more (in all directions) until I was left with a long, fairly thin log.  After resting for an hour, the log was big and puffy, so I gently pulled on it some more and realized that ovens should really come in letterbox.  So I bent it into a squiggle, said “Eureka!” aloud, and then I went off-recipe again and brushed the top with an egg-water wash to give it that slight hint of change of color that snakes have between their topsides and undersides… I was thinking of putting almonds in for eyes (and then I thought of making scales with sliced almonds) but decided against it because the whole point of this project was to make a food for the luncheon that Alex likes and could enjoy with his classmates, as he has been a trooper but still seems to feel a little isolation at school as far as his dietary needs go (due to G6PD Deficiency).  I also thought of burning a screen with the gocco to egg wash on a scale pattern.  Then I realized (and this is a major development in the world of my head and creating) that I was heading down my usually disastrous path of gilding the lily.  So I….

Stopped.

I did.

Really.

Did you see the picture above?  That was the first try. Even after my fantasies of silk screening my meandering length of cheesy dough.

I really did.  See what I mean?  I think that turning 35 next week has me suddenly having great moments of clarity and I’m really embracing all of my quirks these days, instead of putting on “the normal”…  Now I feel like I can use my quirky powers for good, and not derail myself completely.  I have to work smart, conserve what little energy and strength I have, and not go full on sparkle, glitter, laser show, sequins, fog machine, showgirls, hydraulic lift apeshit on everything.   But sometimes I will, because I’m a behind the scenes- make stuff happen- challenge myself (seriously. You know Barney in How I Met Your Mother and how he is always saying “challenge accepted” but nobody actually challenged him… Yeah. I do that. Or I used to. I guess only time will tell.) kind of creature.  And you can take the craft supplies away from this chickadee, but face it glitter freaking sticks to and gets in everything, so really, you can’t totally take away the craft supplies.  That and inspiration is everywhere.  Ooooh. Mah pain meds seem to be kicking in.  Mama is getting more verbose than usual.  Please tell me that you could tell and not that this seems like regular, ol’ me?  Please?!?!?  Pretty please with some demerara sugar and some edible glitter on top?

Where was I?

Oh… So when kiddo came home from his festivities at school, it was reported that 1. the kids and adults loved the bread and it was devoured fast as a wink and 2. the teachers told Baldguy that he should let me know that I am welcome to make this bread and bring it in any time I have the urge to do so.   I knew it was good, but Yippee! Other people actually like it and think it is *that* grand.  Kiddo reported that he was so proud of the reptile themed bread because it was tasty and all of the kids thought it was the coolest food ever. Woohoo!  And then he said that he is proud of what a good bread baker I am (he has plans for us making bread for the whole world!  I’m barely managing a loaf a day for us!)

Oh and the cookies we spent forever decorating? Nobody ate them! They were all stuffed with cheessssssssssy bread!

Remember, sometimes what looks like a trick is actually a treat… and vice versa.
Happy Haunting!

xo

Bek
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Red Blood Cell vs The Bad Guys

4 Oct

Yee-haw.

Ok, not really exciting. Or at least not exciting to most of you… I was trying to explain to Alex what happens between exposure to a trigger substance and the hemolytic anemia part of G6PD Deficiency.

So I told him that the bad stuff makes them explode.

That got his attention.

Eventually, he’ll know the scientific terms for the process, but the idea of cells exploding and making him feel sick is enough to keep him hyper-vigilant over what is safe to eat.   Of course, being my sweet little hyper-focused Aspie with a splash of OCD in there, he triple checks everything that I (a hyper-focused Aspie with obsessive attention to detail) have already quadruple checked.  I told him that I would not put anything in his lunch box that is on the “bad stuff list” and he came home twice that week with some lunch items uneaten because he had questions about the ingredients.  I reaffirmed that I am staying on top of it, but at the same time I am enormously proud that he is this committed to protecting his own health.

Anyway, above is  a picture he drew in his school journal this week, and here is the text that accompanied it…

More on our adventures with G6PD Deficiency coming soon…. The best page I have found, so far, as G6PDDeficiency.org.  There are plenty of general info pages, and a couple of information sites, but I find G6PDDeficiency.org to have the most real life information that doesn’t rely on the stereotypes promoted by early research (important research, but one that prevents diagnosis, in my opinion, when it is the only very incomplete version being passed around to this day).

xo

Bek
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A is for….

22 Mar

Awesome Friend

Laaaaaaa!

Echoes

X-Blocker!

Artistic

Nutty

Drains

Electricity

Reading

(They had to make a “poem” using the letters of their names… That’s just his first name(above)…. His last name list included “Aspie Power!”, “Unique”, and “Superstar!”…The Laaaaa! in his first name is additional proof (like I needed any!) that the apple does not fall far from this Mama apple tree…I have been known to bust into showtune or operatic moments… Lots of “Laaaaaaa!” for no apparent reason, and just for fun…X-blocker is his superhero name.  He can throw his arms and legs up and out like an X and bam! you just can’t get by him-especially in the kitchen or if you are carrying something bulky.)

Anyway, he’s having a hard time.  His teacher, from what I am getting at this end, is having a hard time understanding that Alex’s misunderstanding directions is not willful.  He spends hours on homework with his Daddio every afternoon- so much so that he has no time for play during the week.  It is a struggle.  I think a regular, non-Aspie, non-LD kid would take awhile on the homework, especially as a first grader, but for Alex it’s near impossible.

And the kicker?  They sent home a homework folder with instructions on when homework is due, grading (if one bit is not done he gets a 0 for homework for the whole week), and what needs to be done (ie 5 spelling activities, x number of pages of reading, x number of pages of handwriting, x number of pages of math homework, etc…All supposedly per/week…)

So what do we find out?  The instructions in the homework folder are completely inaccurate from what the teacher wants.  So who gets penalized?  You’ve got it.   It wasn’t x number of pages of math/week- that was a typo- it was that many pages PER DAY.  For the love of Pete! And nobody told us until we were more than half way through the quarter!  They gave out a project assignment, with a due date, which Alex and the bald guy stayed up late working on (and even took a field trip to add authenticity to the “magazine” they were creating)… Alex goes to hand it in and guess what?  It is due the next week and now it is double the pages and there are more parameters to follow.

So, WTF?

To top it off, Alex has come home a few times seeming pretty glum.  I have asked him what happened and I used to assume it was a kid/social issue, and it is sometimes, but more often than not his teacher (who I have met and she seemed like exactly what Alex needed…We did provide the school with information that explains Asperger’s on a basic level and I even gave them some books on the topic and offered both myself and the bald guy as available to address any concerns, questions,etc) is making comments to him that are really pissing him off.  Ok, that’s my word.  But as he has recently taken to not lashing out when someone says something that doesn’t make sense and instead is bottling it up to bring home to me, the words are eroding his self-esteem.

Today he came home and told me that his teacher said that he only does his homework when he feels like it.

?!?$?#@%$@$

WTF?

4 hours nightly and no time for play… Any other time is used talking about social stuff and reading together.

And she thinks he’s only doing homework when he FEELS like it.

Yeah. I know!

The baldman is going to have to go in to talk to her and the principal.  I can’t do it. The same questions and gaps in communication keep coming up and baldman and I are forever walking around with Peanuts squiggles over our heads about the things Alex brings home- homework, things that other people said…. Baldman is going to have to take this by the horns.  I’m too sick (this is the first time I have my laptop open for more than 5 minutes today.) and tomorrow I am pleading with the ER to admit me for tests. Something very screwed up is going on with my spine, nerves, brain.  I’m in pain, I’m exhausted, and I am not alert at any normal human functioning time to communicate with school. And I can’t drive. I can barely leave my bed. And the whole getting my point across without following a tangent and never getting to the point- you know, my Aspieness, my ADD-ness- also lead to Baldman handling this one as an answer.  But it’s really hard being the one that understands Alex. The only one that really understands Alex because we share a neurological disorder, and because of that disorder and my other health crap I can’t advocate for him.  I can’t be as active as he needs me to be and I swear to *insert deity/higher power/universe at large here* that I would rather be a head in a bubbly giant pyrex beaker thing than this broken pile of pain and vertigo and numbness and hypersensitive senses, because as long as there was a way for me to communicate effectively I would do so.  I would advocate for my kid, loud and clear. And people would give me the benefit of the doubt and come to be with questions or for clarification, rather than just ignoring me or judging me.

This is so frustrating.

Anyway. I’m off to the ER tomorrow. It’s the only way I can get the tests I need to see if the damage in my spinal column has finally impinged on the cord, and maybe figure out what the heck the mass on the back of my leg and on my left abdomen are all about.

Sorry for the bitch-fest. Had to get it out.

No where was I… Oh….So…. Parents of awesome Aspies and kids with communication/learning disorders etc..(similar or otherwise)… Any suggestions on communication between home and school? I was thinking of doing the daily report card thing…Has anyone had any luck with that sort of thing? Any suggestions for a kid who doesn’t have an IEP (he goes to private school)?

If I wasn’t this sick, I’d homeschool him in an instant.

And no the baldman can’t do the homeschool thing because (drumroll please) he starts work in 3 weeks! Yes! That is the good news you have waded through this post for since you read the word “LAAAA!” up top!  Baldman got a job with the census!  He starts training in 3 weeks. Which means that even though most of the mechanics of this old broken body are not working or are not feeling right while they are working, we are in a time crunch….

Anyway….suggestions? resources?

hugs all around.

xo

B

P.S.  Once I am back on my feet- or at least sitting upright a little more comfortably, I will be running some sort of a fun and exclusive fund raiser to pay for the impending hospital, docs, and lab bills.  I have a bunch of stuff I never listed and I’m thinking of doing another grab bag extravaganza.  Whatever it is, it will be pretty sweet, ok?  If you have other ideas let me know!

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Day One.

15 Jan

Didn’t resort to bubble wrap today.

But I have a fever.

And once again, today, Alex and I were bumped to an even lower priority in our little family/pod.

Sucks.

But on a positive note, Alex told me that SD cards have the information you save on them written in ink- really tiny letters and photos stored on the inside of the plastic shell in ink. Love it!  And my sugars were insanely awesome today.  Only 6% of readings were above target today.  Lots of lows and near lows, I feel like I ate my weight in Honeybell oranges, but didn’t have to bolus to cover meals and snacks at all. Weird. But I’ll take it!

And our meeting at school was rescheduled for next week… So transitioning Alex isn’t going so smoothly, as we can’t plan for anything without having a meeting to discuss the transition with his teachers…. Wish we could plan. I want to make this change over magical for him, as it’s a major milestone.

Happy Friday folks!

xo

B

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